Living with post-reversal complications after rectal cancer surgery can be quite challenging. This topic revolves around someone who had rectal cancer, underwent surgery to remove the rectum, lived with an ileostomy for three months, and then had a reversal. Since the reversal, they have been experiencing persistent bowel issues such as constant leakage, irritation, frequent bowel movements, and now a prostate-to-bowel fistula. They are seeking advice on whether lasting relief is possible and are questioning if not having the surgery might have been a better choice.

Here are some pieces of advice and insights that might be helpful:

1. It's important to re-consult with your surgical and gastroenterology team as soon as possible. There might be issues like an unsuccessful or incomplete reversal, new complications, or adhesions that could need corrective action.

2. Consider the option of converting to a permanent ileostomy. Many people have found that living with a permanent stoma leads to a more stable and manageable life, with fewer complications or cancer risks compared to after a reversal.

3. Try not to let cancer or surgical setbacks take over your life. Keep hope alive and continue to push your medical team for solutions.

4. Be prepared for a prolonged recovery period after a reversal. It's common to experience accidents, pain, and frequent bathroom trips for several months. Many patients notice gradual improvement, but it requires patience and perseverance.

5. Nutritional support can help ease symptoms. A dietitian might recommend probiotics and digestive enzymes to improve nutrient absorption, stabilize stool, and help regain lost weight.

6. Strategic eating can help control accidents when you need to leave home. Some people find it helpful to limit food intake before important events and avoid trigger items like beer or certain foods to reduce urgency.

7. Stay positive and seek emotional support. Focusing on family, milestones, and maintaining mental resilience can make ongoing challenges more bearable.