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Oct 23, 2013

How to prepare for a successful ileostomy reversal and defecating proctogram?

This topic is about preparing for an ileostomy reversal, specifically focusing on strengthening rectal muscles to pass a defecating proctogram, which is a crucial step in the process. Here are some helpful insights and advice for anyone in a similar situation:

- The person is 48 years old and very motivated to have their ileostomy reversed. Their surgeon has outlined three main criteria for the reversal: stopping all pain medication, resuming adequate oral intake, and passing the defecating proctogram.

- Before the surgery, the bowel was twisted in a 360-degree knot, which has now been removed. The surgeon believes that stool should move more freely once healing is complete.

- The person plans to ask their healthcare provider about specific exercises or therapies to improve rectal muscle tone.

Advice and insights from others include:

1. Importance of Expert Evaluation:
- It's crucial to consult with top colorectal centers and specialists who have the right equipment, like a non-latex anorectal manometry machine.
- Proper pre-testing can help prevent failed reversals and complications such as incontinence or the need for a re-stoma.

2. Pelvic-floor and Rectal Muscle Conditioning:
- Pelvic-floor exercises, similar to Kegels, and biofeedback therapy are standard practices. These should be guided by a qualified physical therapist, especially if there are other conditions like a parastomal hernia or kidney disease.
- Some hospitals offer biofeedback programs that have helped others strengthen their rectal muscles.
- Engaging in Pilates and core-strengthening classes three or more times a week can help rebuild inner abdominal and pelvic support. It may take at least six months of consistent effort to see noticeable improvements.

3. Time Since Original Surgery Affects Outcomes:
- Those who had a reversal within one year of their original surgery reported easier adaptation. In contrast, those with a stoma for several years found it more challenging to regain bowel control and often experienced irritable bowel symptoms.

4. Potential Risks and Alternate Paths:
- Failing the proctogram, such as evacuating only a small percentage of contrast, might rule out reversal, especially if ongoing therapy is unaffordable or not medically advisable.
- Some people have had to recreate an ileostomy after an initial reversal, highlighting the importance of thorough pre-operative screening.
- Some patients choose to keep a permanent ostomy to avoid the risks of repeat surgery, infection, or a decline in quality of life.

5. Practical Preparation Tips:
- Start supervised pelvic-floor therapy as early as possible.
- Strengthen overall core muscles with safe exercises like Pilates or low-impact gym work, while avoiding movements that could strain a hernia.
- Keep realistic expectations, as muscle re-education is a slow process that requires patience and consistency.

6. Consider Personal Factors:
- Take into account age, overall health, the course of the disease, and the ability to travel for therapy when deciding whether to pursue a reversal.
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