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41,458 members
Jan 03, 2014

Struggling with Chronic UTIs and Seeking Solutions

This topic is about dealing with chronic urinary tract infections (UTIs) after having a urostomy, specifically an ileal conduit, which is a type of urinary diversion surgery. This person has been experiencing ongoing UTIs for 20 months following surgery due to a spinal injury. Here are some insights and advice shared in the discussion:

- The first urologist suggested continuing with antibiotics, but this did not resolve the issue.
- A second opinion recommended a three-month course of continuous antibiotics, which also did not lead to improvement.
- The next step involves undergoing a contrast scan of the kidneys and the conduit to the stoma. This scan aims to identify potential causes of the recurrent infections, such as:
1. A persistent, deep-seated infection that might require an extended, high-dose antibiotic treatment, although this is considered the least likely cause.
2. The presence of crystals or stones that are not visible on regular imaging.
3. Most likely, a narrowing (stricture) in the conduit that causes urine to back up, leading to recurrent infections. This might necessitate a complete redo of the stoma surgery.

The person is currently waiting for the scan and its results.

In a conversation with another member who frequently experiences hospitalizations due to UTIs, the originator asks about the reasons for hospitalization, noting the pain and frustration caused by the recurring infections, which return immediately after finishing antibiotics.

Some additional advice and insights include:

- Recurrent UTIs can become severe enough to require hospital admission, with some patients experiencing extreme pain that only intravenous morphine can relieve.
- The temporary relief provided by antibiotics may be followed by an immediate recurrence of the infection once the course ends, suggesting the need for further investigation or alternative treatment strategies.
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