This topic is about navigating the process of claiming Disability Living Allowance (DLA) in the UK for someone who has an ileostomy due to Crohn’s disease and is working part-time. The person is experiencing extreme fatigue and is seeking advice on whether they can receive DLA while still employed part-time. Here are some helpful insights and advice shared by others in similar situations:

1. DLA and Working Status
- DLA is not based on your income or employment status, so you can receive it even if you are working part-time.
- Some people have found that working part-time might make it seem harder to get an award, although the rules state it should not affect your claim.

2. Where to Get Help
- Visit your local Social Security or Welfare Rights office for official information and guidance.
- Citizens Advice (CAB) is highly recommended for help with completing the application, as many have had better success rates with their assistance.

3. Completing the DLA Form
- Describe your condition based on your worst days, not your best.
- Highlight issues like night-time leakage, bed changes, showering, and daytime fatigue.
- If your claim is refused, appeal immediately, as many first-time refusals are overturned on appeal by a different decision-maker.

4. Appeals Experience
- Be prepared for appeals to be emotionally challenging; some assessors may not fully understand stoma-related issues like leakage.
- Providing evidence of related mobility or other health issues can be helpful, though it does not guarantee success.

5. Other Financial & Practical Help
- If you need to stop working, consider applying for Incapacity Benefit (now Employment & Support Allowance) or Disabled Working Tax Credit if you work 16+ hours on low pay.
- Households with a water meter may qualify for cheaper water rates due to increased usage from stoma care.
- Local councils might provide an additional household waste bin for disposing of stoma supplies.

These insights aim to support those in similar situations, offering practical advice and resources to help manage both financial and daily living challenges.