Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,413 members
May 17, 2014

New to ileostomy - seeking advice/friends/help/sanity lol

This topic is about a 32-year-old teacher who is adjusting to life with a new ileostomy after surgery for colorectal cancer, following a long history of Crohn’s disease. The teacher is preparing to start chemotherapy and is seeking advice on managing various challenges related to the ileostomy. Here are some helpful insights and advice:

- Watery output is common with an ileostomy, and its color can vary based on diet. It's important to stay hydrated, and using solutions like St. Mark’s re-hydration can help.

- Gas can be a problem, especially overnight. Consider using simethicone (found in products like Gas-X) or peppermint capsules to help manage it. Avoid foods that are known to cause gas, such as beans and fizzy drinks.

- If you're experiencing frequent leaks, a convex appliance might be necessary, but if it's painful, try different brands or types that might be more comfortable. Using a hair-dryer to warm the adhesive can improve its stickiness.

- For skin care, protect your skin with barrier sprays or wipes, and avoid using soaps with oils or perfumes on the area around the wafer.

- During chemotherapy, expect changes in your output, which might become looser and more acidic. Increase the frequency of pouch changes and use additional skin protection.

- To thicken high-liquid output, incorporate foods like pasta, rice, and potatoes into your diet. Drinks like Powerade or Gatorade can help with hydration.

- When showering, you can choose to leave the pouch on and dry it afterward, or remove it for some skin "air time" if you're planning a change.

- For travel or work, keep an emergency kit with spare supplies and ensure you have access to a toilet. Consider starting with half-days at work and use clothing that helps conceal the appliance.

- Joining support groups can be beneficial, as many people successfully manage life with an ileostomy. Remember, it's a learning process, and confidence will grow over time.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,413 members.

“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”

“Our oncologist literally wrote down the link; they said more patients need this website.”

“This place pulled me out of the dark. I went from lurking to living again.”

“At 3am, someone’s awake somewhere in the world. I’m never alone here.”

Join Free

Popular Topics

Best Deodorant and Lubricant Tips for Ileostomy Users
Bowel Cancer
Travel Tips for Ostomates Visiting Switzerland
Input/Recommendations on Products to Use
Kerry Update
Stealth Belt
M9 Deodorant: Miracle or Myth?
Hey stoma mamas!
TOILETING
Binder Clips for Fixing Leaky Velcro Pouches

New Topics

Hows a going yall ...
B. Withers-Be Kind 127
Anyone Here Play Pickleball?
CAR LOVE
David Letterman's Top 10
B. Withers - Be Kind 76
Deciding to Keep My Colostomy: My Personal Journey
Seeking Alternatives to Adhesive Ostomy Bags
Best Deodorant and Lubricant Tips for Ileostomy Users
OPEN MINDS
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑