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41,452 members
Jul 15, 2014

Struggling with a Flange Allergy and Feeling Isolated

This topic is about dealing with an allergic reaction to the adhesive used in ostomy flanges, which can cause a severe and painful rash. The person experiencing this issue found that their initial treatment with topical creams was ineffective because the flange wouldn't stick properly. A wound-care nurse identified the problem as an allergic reaction to the adhesive, not an infection. The solution involves using a sensitive-skin product from a different company, which is costly and only available from Montreal, leading to feelings of frustration and isolation. Here are some helpful tips and advice from others who have faced similar challenges:

1. Be cautious with dye or "picture-frame" adhesives, as they can trigger reactions. Some people have found success by switching to a white Stomahesive wafer without a picture frame and alternating it with the picture-frame version to reduce continuous exposure.

2. Consider using pre-cut, glue-free flanges. Many users report that these are easier to apply and cause fewer skin issues.

3. Explore products from other manufacturers. Both Convatec and Hollister offer sensitive-skin systems. Hollister's website can connect you with their Calgary-based Enterostomal Therapist (ET), who can send free samples.

4. At the first sign of irritation, take an oral antihistamine like Benadryl (diphenhydramine 25–50 mg). Inexpensive generic versions are available. It's also helpful to take it about an hour before changing your appliance.

5. If the area becomes moist and nothing sticks, check for a yeast infection. Arglaes Powder can be applied under the wafer to clear yeast quickly, allowing the flange to adhere better.

6. Arrange a visit with an Enterostomal Therapist. In Ontario, Partners in Community Nursing (PICN) offers ET and wound-care services with 120 RNs/RPNs. Manufacturer ETs can also provide advice and samples.

7. For sourcing supplies, local outlets like Shoppers Home Health can order most brands, so you don't have to rely solely on Montreal.

8. Joining a support group can help reduce feelings of isolation and provide practical assistance. The Ostomy Canada Society lists chapters nationwide, where members often share surplus supplies.

9. When treating open skin, some users apply healing cream directly to the lesion, cover it with a bandage and tape, and then place the flange over that layer, changing it daily until healed.

10. Community support is available through Skype, Facebook, and email contact, reminding you that no one with an ostomy has to cope alone.
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