This topic is about a person who has had an ileostomy for 3½ years due to Crohn’s disease and is experiencing some concerning changes with their stoma. The stoma has been collapsing for about a year, and now the output is coming through two openings, which is noisy and uncomfortable. There is also a dark patch in the center of the stoma. During a recent bag change, the upper part of the stoma changed color from its normal pink to a creamy white and then back to pink, which has caused some worry. Although the stoma nurse has been consulted several times, no surgical referral has been made, and the person is considering whether to urgently contact the nurse.

Here are some pieces of advice and insights shared by others:

1. Many believe that the color change, discomfort, and altered output might indicate a partial blockage.
2. Some self-care steps that might help include:
- Drinking plenty of fluids.
- Taking hot liquids like hot tea, coffee, or plain hot water to stimulate output.
- Gently massaging the abdomen and the skin around the stoma.
- Lying down, bringing knees toward the chest, and changing positions to help move the blockage.
3. If the stoma appears more swollen than usual or if these measures do not provide quick relief, it is important to seek prompt medical attention or go to the hospital.