CPAP and Ileostomy Problems

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Oct 13, 2025 1:33 am

Do we have anyone else out there who has an ileostomy and uses a CPAP? My bag will inflate so large at times. It is 100% full of air, and I have to air it or it will explode. It doesn't happen every night, but more often than not. I don't know if it is a breathing issue or not. My biggest question would be…why is the air taking that route?

SusanT
Oct 13, 2025 2:23 am

There was an extensive conversation on this a few months ago. It comes down to how much air you swallow. If you tend to swallow a lot of air, the CPAP can make you more likely to swallow more air while you sleep. If you don't swallow a lot of air, you might never notice a difference with the CPAP.

Posted by: GoinWithTheFlow

Hubz had a regular checkup with the oncologist on Friday (his numbers are improving), and as they were asking how he's feeling since surgery, they became curious about how he's doing so well with his ostomy, both physically and mentally. He credited doing research online, trying different things, and especially the support from this group. They were asking because they see so many patients struggling to adjust.

We described this group as folks with every kind of ostomy, some for days while others for decades, but all willing to share what's worked for them with the caveat that every individual is different.

We described the most valuable element as feeling like you're not alone in this. That really piqued their interest, and they wrote down the link. It seems they had a few people in mind that might benefit from the community and thanked us for telling them about it.

You know, we can't remember exactly who we learned about this group from, but we're grateful for it every day! Thank you all! 🌻

Axl
Oct 13, 2025 5:43 am

Are you sure it's the machine and not the diet?

Bill
Oct 13, 2025 7:45 am

I find that wearing a chinstrap to keep my mouth closed makes a lot of difference to how much air I swallow.

Justbreathe
Oct 13, 2025 10:51 am

Hubby has a CPAP, and a chin strap (as Bill mentioned) helped a lot. Milk and milk products will cause my bag to become a blimp in the night, so Axl's comment is valid as well…maybe avoid foods that cause gas…jb

 

My Ostomy Journey: Ryan | Hollister

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infinitycastle52777
Oct 13, 2025 5:09 pm

What type of mask do you use? I use the kind that goes over my nose only, and I don't have a problem with my bag inflating. I think if you use a full mask, there is probably more of a chance of that happening. You might be taking air in through your mouth, and then it goes down your throat and into your bag. Just a thought.

Kyle
Oct 14, 2025 1:55 am

It sounds like the air is going into your stomach, which happened to me when I had a failed intubation. I woke up with terrible pain in my stomach as the doctor had been pumping air into me until I woke up enough to breathe on my own. CPAP may not be possible for you. I used CPAP for a few years until they didn't make a mask I could stand. I am borderline needing it, so the doctor said to forget it as I had to use 2 Imovane a night just to sleep with the machine. To be honest, it never made me feel any better.