Living with an ileostomy can be challenging, especially when complications like hernias and fistulas arise. One person has been dealing with these issues for three years and is now facing the possibility of switching to a colostomy, as suggested by their doctor. They are seeking advice on what life with a colostomy might be like.

Here are some insights and advice shared by others:

1. Some people are confused about the suggestion to switch from an ileostomy to a colostomy, as an ileostomy usually means there is little or no colon left. They recommend asking the surgeon to clearly explain which parts of the bowel are still present, where the fistulas are located, and why a colostomy is being considered.

2. One person, who had a less than ideal experience, suggests looking at past discussions for detailed warnings but emphasizes that everyone's experience can be very different.

3. Another person explains the difference between the two procedures:
- An ileostomy involves bringing out the end of the small intestine (ileum), usually because the colon is severely diseased or has been removed.
- A colostomy involves bringing out part of the colon. Understanding the current state of your anatomy is crucial before agreeing to more surgery.

4. Someone who transitioned from a loop ileostomy to a total proctocolectomy shares that their quality of life improved significantly. They no longer experience pain, urgent bathroom trips, or need immune-suppressing medications, and they find ostomy management straightforward. They suggest getting a second opinion but acknowledge that the surgeon's advice might be helpful.

5. Another person highlights the importance of understanding the cause of recent abdominal pain, how the hernia and fistulas are involved, and what the long-term goals are, such as cancer monitoring. They reassure that many people live well with either type of stoma when they have the right information and support.