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Feb 13, 2015

Experiences with irrigation system for permanent stoma?

This topic is about the experiences and insights of people who use irrigation for managing a permanent stoma. If you're considering this method, here are some helpful points based on real-life experiences:

- Start-up and learning curve:
- Many people begin learning irrigation within the first week after surgery. It might feel awkward initially, but with patience and consistency, it becomes a routine.
- It's important to stick with it for a few months, as early results can vary while your bowel adjusts to the new routine.

- Frequency, timing, and duration:
- Common schedules include irrigating every morning before work, every evening, or every 24–48 hours.
- Reducing fiber intake can help extend the clean-out period to two days.
- Having a fixed daily time is beneficial, but some people successfully alternate between morning and evening sessions due to work commitments.

- Water volume:
- A common water volume is 1.5 liters. Adjust the volume and flow rate to avoid cramps, slowing the flow if cramping starts.

- Continence between irrigations:
- Some achieve full control and use only a stoma cap, plug, or small bandage instead of a pouch.
- Others, especially those with IBS or less residual colon, may still wear a pouch for peace of mind but experience fewer surprises.

- Equipment and supplies:
- Standard gravity-bag irrigation sets, sleeves, and stoma plugs/caps are commonly used. Some people travel with a self-assembled kit.
- Hollister provides a helpful PDF guide on colostomy irrigation, detailing the necessary supplies and step-by-step techniques.
- For overnight security, an irrigation sleeve can be left in place like a bag.

- Troubleshooting and optimization:
- Experiment with different options like sleeves, pouches, or plugs to find what feels safest for you.
- Reducing very spicy foods or large quantities of food can help maintain predictable results.

- Getting instruction:
- If your stoma nurse is unfamiliar with or discourages irrigation, consider seeking advice from another ostomy nurse, watching YouTube demonstration videos, or using manufacturer guides like those from Hollister.

- Lifestyle benefits reported:
- Many people report increased freedom to travel, enjoy beach and outdoor activities, engage in off-roading, maintain a diverse diet, and feel more confident at work and in social settings.

- Colon length consideration:
- Irrigation tends to be easiest and most successful when at least two-thirds of the colon remains.
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