This topic is all about sharing tips and tricks for managing an ostomy bag, preventing leaks, and understanding typical change schedules. Here are some helpful insights and advice from fellow ostomates:
- Wearing the pouch sideways or at an angle can be beneficial for activities like golf, swimming, or wearing tight clothing. It helps keep the pouch snug and prevents discomfort. Some people use a ribbon for support instead of buying a specialized belt. However, emptying a sideways pouch in public can be tricky.
- Switching between closed-end and drainable pouches can help manage leaks. Closed-end pouches are often preferred for exercise, while drainables are handy for travel. Insurance may cover more closed-end pouches, making them a cost-effective option.
- Change frequency varies:
- Closed pouches are typically changed 1-3 times a day.
- Drainable pouches in a 2-piece system can be rinsed and reused several times before needing replacement.
- Barriers or flanges generally last 4-7 days, but this can vary based on the product and individual needs.
- To prevent leaks and secure edges, Eakin Cohesive Slim seals are recommended. Waterproof tape can help hold down lifted edges, and a bit of Vaseline can make cleanup easier. Adding Velcro to the drain spout or using a small clip can prevent dangling.
- For gas management and odor control, "burping" a 2-piece system or using an Ez Vent valve can help. Charcoal-based deodorizing inserts are effective for reducing odor. Some users prefer non-filtered bags with separate vents.
- DIY hacks include using a mini shower curtain to keep the appliance dry, modifying underwear to reduce UTIs, and storing reusable bags in a coffee can to control odor. Wraps or belts can keep the pouch flat during workouts, and wearing the pouch sideways under a swimsuit can keep it secure.
- Dietary choices can affect output and frequency. For ileostomy, avoiding foods that swell is advised, while some foods like Thai rice noodles and hummus are generally well-tolerated. Occasionally, products like Miralax or grape juice can help with blockages, but always under medical guidance.
- Various brands and products are mentioned, such as Hollister, Convatec, Coloplast, Pelican Healthcare, Eakin Cohesive Slim seals, Ez Vent valves, and Diamond Charcoal Deodorizing Inserts. These can be useful for finding the right fit and solution for individual needs.
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