I was gifted my ostomy via a colostomy on September 19, 2025. I have suffered from ulcerative colitis for 20 years and more recently diverticulitis. I am reflecting on how my life has changed. I lost 30 pounds and actually am happy about that! I had several abdominal abscesses and think some of that weight was from the infection. I had not felt well most of the summer and am enjoying feeling more healthy. The headaches and chills and fever are gone. The pain from diarrhea and constipation are gone.
I have adapted well to the use of the ostomy bag and change every third day. My husband still helps with changing, although I can do it on my own. I am still careful about what I eat. I eat mostly softer foods and not a lot at a time. If I eat more, I just feel uncomfortable especially at night. So many times, I skip the evening meal. But, food tastes so much better than before surgery. My favorites are chicken and noodles, I add peas and carrots to it for a little fiber. I also love mashed potatoes with butter and melted cheese. I had not eaten sherbet in years, but forgot how much I loved and have added that for a snack. I have eggs for breakfast and yogurt for a mid-morning snack. Another favorite is pasta and my homemade tomato sauce. I try to focus on foods that digest easily that I like and not think about what I should not eat like sweet corn, popcorn and nuts. We have always eaten out a lot, but not so much now. It is more difficult to find foods that are not fried. I always enjoyed a beer and a burger, but found I get along just fine without alcohol.
The best part is not worrying about accidents. I really thought I would spend the rest of my life looking for a bathroom or cleaning up the mess! My only leakage was after a shower when I did not check the seal or put the belt back on. I am a candidate for reversal, but am not convinced I want to deal with colitis problems again.
I had a wonderful home health nurse and wound nurse that assisted in the first few months after the surgery.
This forum has been awesome! I have read many of the posts and learned so much and enjoy the humor also. I look forward to reading further posts as a part of this community. What has been the biggest change in your life?
