This topic is about someone who has just started using colostomy irrigation and is seeking advice on how to manage it effectively. They are experiencing some challenges and are looking for guidance on water volume, sleeve re-use, cramping, and diet troubleshooting. Here are some helpful insights and advice:
- Water Volume and Delivery
- Many people use between 800 ml and 1.5 liters of water for irrigation. It's important to listen to your body to know when you've used enough water rather than sticking to a fixed amount.
- Some people find it helpful to use a "two-stage" method: insert half the water, allow an initial release of stool, and then finish the infusion.
- If you have issues with hernias or slow water flow, a 5-liter pressurized garden-style container might help, while keeping the cone nozzle unchanged.
- Water Temperature
- The water should be body-temperature or lukewarm. Water that is too hot or too cold can cause cramps and poor evacuation.
- The Coloplast irrigation bag has a built-in thermometer, but if you're using a Hollister set, you might need an external thermometer.
- Sleeve/Drain Re-use
- Although Dansac Irridrain sleeves are labeled for single use, many people re-use them by rinsing thoroughly or attaching them to a homemade backing plate.
- After evacuation, pour warm soapy water through the sleeve, rinse several times, and hang it to air-dry. Sleeves can last for weeks or even months.
- Cleaning and Accessories
- Rinse the cone and sleeve with leftover warm water. A pressurized container can also help flush the sleeve interior.
- Stoma plugs or caps can relieve trapped gas between irrigations. Some people alternate these with "large band-aid" style dressings instead of a pouch.
- Establishing the Routine
- Try to irrigate at the same time every day during the training phase. This helps your body adapt to a full 24-hour continence.
- Missing a session or changing the time can lead to premature output.
- Lying on your back can help with evacuation if output stalls. Inserting a lubricated finger to guide the cone is safe since the stoma has no nerves.
- Cramping and Pain Troubleshooting
- Cramping should not occur, so check the water temperature first.
- Trapped wind is a common cause of cramping. Release gas using stoma plugs or gentle abdominal massage.
- Large peristomal hernias can momentarily block flow. Maintain gentle pressure rather than forcing more water.
- If cramps persist, review your diet and hydration with a clinician.
- Diet Pointers
- High-fiber foods, grain products, and bulking agents like Benefiber can shorten "clear time" and increase gas. Many people limit or avoid them.
- Try a 48-hour zero-fiber, low-carb, high-protein plan (meat, fish, cheese, eggs) to see how it affects cramps and output.
- Eat several small meals, never eat to fullness, and chew thoroughly.
- Metamucil (psyllium) taken at bedtime can help settle the colon after a high-fiber day.
- Everyone is different, so keep notes on food and output and adjust gradually.
- Learning Resources
- There is a step-by-step demonstration video available online to help guide you through the process.
- Encouragement and Time Commitment
- Many people find that irrigation ultimately takes less daily time than managing unpredictable pouch output.
- Expect several weeks of experimentation. Many users eventually stop using bags entirely and wear only a cap or adhesive dressing.
- Mentioned Manufacturers and Products
- Dansac Irridrain sleeves, Coloplast irrigation bag, Hollister irrigation set, Metamucil, Benefiber, Tums, stoma plugs/caps.
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