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Jun 07, 2016

Coping with a New Colostomy - Seeking Advice and Support

Coping with the first few months after an emergency colostomy can be quite challenging. It's a time filled with a mix of emotions, physical adjustments, and learning to manage new routines. Here are some insights and advice that might help during this period:

1. Emotional Support & Time
- It's normal to feel fear, depression, and grief. Many people find the first 3 to 18 months the most difficult.
- Taking things "one day at a time," seeking counseling, considering antidepressants, engaging in prayer or faith, and joining support groups or online forums can be very helpful.
- Keeping a journal to track your progress can show you how far you've come.
- Remember, everyone heals and adapts at their own pace, so try not to compare yourself to others.

2. Professional Help
- Engaging with a WOCN (Wound, Ostomy, and Continence Nurse) early on can provide hands-on fitting lessons, product trials, and boost your confidence.
- Having good nurses and considerate primary-care physicians can make follow-up visits more manageable.

3. Leakage Control
- Leaks are common in the beginning. Address each issue separately and experiment until you find what works for you.
- Request free samples from different manufacturers to test fit and wear-time.
- Some products that have been helpful include Coloplast SenSura Mio one-piece pouches, ConvaTec educational literature, convex flanges, and ostomy belts.
- Proper skin preparation is important: wash with non-oily, non-perfumed soap and avoid products that leave a residue.
- Some people prefer to shower without the pouch and then apply a fresh one, while others keep it on to avoid compromising the wafer's adhesion.
- Always carry an emergency kit with essentials like a spare pouch, wafer, barrier wipes, mirror, and tissues when you leave home.

4. Incision & Skin Care
- Incisional swelling usually decreases over time, improving appliance fit as the abdomen flattens.
- A high-protein diet can support wound healing.
- If energy is low, twice-daily cleansing can be done with gentle products while seated, ensuring the skin is soap-free before applying the pouch.

5. Optional Techniques
- Once fully healed, some people choose to irrigate every 1–2 days to reduce output between irrigations and minimize leaks.
- Naming the stoma can help some people accept this new part of their body.

6. Daily Living & Return to Activity
- Returning to work can take anywhere from 7 weeks to over a year, with stamina gradually rebuilding over time.
- Mistakes will happen, even months later, but confidence grows with each successfully managed leak or public outing.
- Keep trying new products; it may take months to find the "right" system, but once you do, life becomes much easier.
See full discusison
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