This topic is about someone who is feeling overwhelmed and frustrated after experiencing complications following major surgery. They are having trouble finding a two-piece ostomy system that works for them, and the ongoing issues with leakage and fit are taking a toll on their emotional well-being. They are looking for support and advice from others who have been through similar experiences.
Here are some helpful insights and advice shared by others:
1. Emotional reassurance
- It's normal to feel sad and frustrated in the early months. Many people find that their confidence grows once they find a reliable setup.
- The first six months can be particularly challenging because the stoma changes in size and shape. Persistence and trying out samples are key.
2. General fit and leak-prevention tactics
- Request samples from different vendors until you find the right combination. Speak with company representatives and ostomy nurses for personalized suggestions.
- Convex wafers, either deep or regular, with a seal or ring underneath, can help prevent leaks for difficult stomas.
- Make sure your skin is thoroughly dry after showering. Some people use a blow-dryer. Avoid using soaps, shampoos, lotions, or conditioners that leave a residue.
- After applying the wafer, press it down or "steam-roll" it for better adhesion. An empty tape spool can work as a mini-roller.
3. Accessories and products that may be helpful
- Barrier rings like Hollister rings and Eakin Cohesive Slims are recommended.
- Two-piece appliances mentioned include the Hollister 2-piece system with a mini-pouch and the Salts 2-piece system.
- A new deep-convex one-piece model is available in Canada, though the brand is not specified.
- ColoMajic liners can fit inside the Hollister mini-pouch.
4. Managing output and thickness
- Loperamide (Imodium) can be used for high-output or rapid transit issues. Start with one pill and increase as needed, following medical advice. Inexpensive generics are available on Amazon.
5. Practical everyday tips
- A light dusting of ostomy powder before applying the wafer can improve adhesion.
- Always carry spare appliance parts when you are away from home.
- The "Awesome Ostomy" Facebook page offers free tips, ideas, and clothing/fashion guidance for ostomates.
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