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Jul 13, 2016

Seeking Support and Friendship Amidst Ostomy Challenges

This topic is about someone who is feeling overwhelmed and frustrated after experiencing complications following major surgery. They are having trouble finding a two-piece ostomy system that works for them, and the ongoing issues with leakage and fit are taking a toll on their emotional well-being. They are looking for support and advice from others who have been through similar experiences.

Here are some helpful insights and advice shared by others:

1. Emotional reassurance
- It's normal to feel sad and frustrated in the early months. Many people find that their confidence grows once they find a reliable setup.
- The first six months can be particularly challenging because the stoma changes in size and shape. Persistence and trying out samples are key.

2. General fit and leak-prevention tactics
- Request samples from different vendors until you find the right combination. Speak with company representatives and ostomy nurses for personalized suggestions.
- Convex wafers, either deep or regular, with a seal or ring underneath, can help prevent leaks for difficult stomas.
- Make sure your skin is thoroughly dry after showering. Some people use a blow-dryer. Avoid using soaps, shampoos, lotions, or conditioners that leave a residue.
- After applying the wafer, press it down or "steam-roll" it for better adhesion. An empty tape spool can work as a mini-roller.

3. Accessories and products that may be helpful
- Barrier rings like Hollister rings and Eakin Cohesive Slims are recommended.
- Two-piece appliances mentioned include the Hollister 2-piece system with a mini-pouch and the Salts 2-piece system.
- A new deep-convex one-piece model is available in Canada, though the brand is not specified.
- ColoMajic liners can fit inside the Hollister mini-pouch.

4. Managing output and thickness
- Loperamide (Imodium) can be used for high-output or rapid transit issues. Start with one pill and increase as needed, following medical advice. Inexpensive generics are available on Amazon.

5. Practical everyday tips
- A light dusting of ostomy powder before applying the wafer can improve adhesion.
- Always carry spare appliance parts when you are away from home.
- The "Awesome Ostomy" Facebook page offers free tips, ideas, and clothing/fashion guidance for ostomates.
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