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Nov 05, 2016

Feeling Frustrated with Colostomy Complications

This topic is about dealing with the challenges that come with having a colostomy, specifically focusing on issues like leaks, hernias, and feelings of isolation. Here are some helpful tips and insights to make this journey a bit easier:

1. **Identifying and Managing Leaks:**
- If the outer wafer edge is lifting, try using stoma powder to manage moisture and consider using an ultra-thin film like Stoma Seal for better adhesion.
- For leaks near the stoma opening, barrier paste can act as a flexible dam. Apply it with a wet finger while using warm water to smooth it out, keeping it in a ring around the stoma/wafer hole.
- If the pouch is detaching or there are leaks at the tail-end, experiment with different locking systems like Hollister New Image or Coloplast two-piece systems. Closed-end pouches can help prevent tail-closure failures.

2. **Trying New Products:**
- Keep trying different products until you find what works best for you. Companies like Hollister, Coloplast, and Convatec offer expert advice and free samples. Edgepark can also send samples upon request.

3. **Extra Adhesion and Support:**
- Wearing a hernia belt can provide support. Some people use a small incontinence pad under the belt to maintain pressure and prevent seepage.
- Consider an ostomy irrigation program, which can help empty the bowel once a day, reducing the need for constant pouch wear.
- Use Brava or Eakin rings along with stoma powder for a more secure seal.

4. **Lifestyle and Prevention Tips:**
- Avoid heavy lifting to prevent worsening the hernia; let family members help with such tasks.
- Modify your exercise routine to avoid moves that strain the abdominal wall, like crunches.
- Review your diet, as overeating or consuming certain foods can increase output and lead to leaks.

5. **Emotional and Practical Support:**
- Remember that leaks and parastomal hernias are common, and it's not your fault.
- If speaking is difficult, consider watching YouTube tutorials or having someone else contact suppliers for you.
- Patience and persistence are key. Improvements often come with trial and error, and the support of the community can be invaluable.
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