This topic is about someone with Crohn’s disease who is considering a proctectomy, also known as a "Barbie/Ken butt" surgery, to remove a diseased rectal stump left after an ileostomy. The person had an emergency colectomy in 2011, leaving part of the colon and rectum intact, but now faces severe inflammation and other issues. They are seeking advice on whether to proceed with the surgery to remove the remaining colon and rectum and close the anus.

Here are some insights and advice shared by others who have been through similar experiences:

1. Research is key. There is a detailed thread titled “Surgery to remove rectum, post-ileostomy” in the site’s Collections under “Ostomy Surgeries and Procedures” that might be helpful.

2. Many people who have had their anus and rectum removed report being satisfied with their decision. They are relieved to be free from mucus, bleeding, and the risk of cancer. While pain is expected, it is generally manageable, with the initial recovery period being the most challenging.

3. Healing and comfort over the long term can vary:
- Sitting on hard surfaces may be uncomfortable for months, but a flat foam pillow can help.
- Some people experience phantom rectal sensations, which may lessen over time or not occur at all.
- Complete healing can take a while, up to three years for some, but significant pain and discomfort usually resolve much sooner.
- Firmly packing the wound with rolled sterile gauze can reduce friction and leakage and promote healing.

4. Activity levels can return to normal relatively quickly. One person was back on a motorcycle within three months, and another resumed an active lifestyle, managing their colostomy with ease.

5. From a cancer-prevention perspective, removing inflamed tissue eliminates a significant future cancer risk.

6. An alternative approach from someone who kept the rectal stump involves using daily turmeric to control inflammation, which significantly reduced bleeding. They shared a recipe for a Turmeric Latte, which includes simmering ground organic turmeric with water, mixing in coconut oil or olive oil, and adding spices like ginger and cinnamon. This paste is then mixed with milk and honey each morning. They purchase turmeric in bulk from suppliers like Starwest or Frontier.

7. It's important to remember that systemic inflammation can persist even after stump removal, so ongoing anti-inflammatory measures are still important.