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Jul 03, 2017

Longest stoma lifespan & causes?

The topic at hand is about the longevity of a stoma, which is an opening created during surgery to allow waste to leave the body. People with a stoma often wonder how long it can last before needing a revision or replacement, and what factors might lead to such changes. Here are some shared experiences and advice from individuals who have lived with a stoma:

- Reported stoma lifespans vary widely:
1. Over 50 years with an ileostomy, still functioning with only minor retraction.
2. 50 years with an ileal conduit, with no issues.
3. 45 years with a colostomy, also with no issues.
4. 7 years before revision due to a fistula-related infection.
5. Over 6 years before revision after a Crohn’s flare caused a peristomal ulcer and fistula.
6. 7 years before revision due to stoma retraction and chronic leaks.

- Common reasons for needing a stoma revision or replacement include:
1. Abdominal or peristomal fistulas leading to infections or ulcers.
2. Stoma retraction causing persistent leakage and skin irritation.
3. Flare-ups from Crohn’s disease or ulcerative colitis damaging the tissue.
4. Weight gain and a weakened abdominal wall potentially contributing to issues.
5. Adhesions or hernias, which are risks that can sometimes be unavoidable.

- Tips to help prolong the life of a stoma:
1. Maintain a healthy weight, exercise, and keep abdominal muscles toned to reduce stress on the stoma site.
2. Use an ostomy belt to support the appliance and lower hernia risk. A specific brand mentioned is Nu-Hope, with different belt sizes for different body types.
3. Follow prescribed medications for inflammatory bowel disease (IBD) and monitor your diet to minimize flare-ups if you have Crohn’s or ulcerative colitis.
4. Treat the stoma gently and avoid unnecessary surgical revisions unless absolutely necessary, as a well-functioning original stoma is often preferable.
5. Be vigilant for early signs of infection, leakage, or skin breakdown to manage issues before they require major surgery.

- Additional insights:
1. Adhesions can form after any abdominal surgery and may eventually cause intestinal obstruction, but they are largely beyond a patient's control.
2. Some individuals have lived with the same stoma for decades without complications, showing that long-term stability is possible.
See full discusison
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