This topic is about someone who is facing several challenges after having loop ileostomy surgery. Ten weeks post-surgery, they are dealing with painful, unhealed skin around the stoma, and this is compounded by existing health issues like arthritis, depression, anxiety, PTSD, and fibromyalgia. The cold weather isn't helping either. All these factors are making it hard for them to manage their stoma care and mental health. They are seeking advice on how to reach out for help, be patient, and find practical solutions.
Here are some helpful suggestions:
1. Skin-care products and techniques:
- Consider using a Mouldable Flange from ConvaTec to protect and heal irritated skin.
- If you have an adhesive allergy, try a flange without a tape barrier.
- Apply Duoderm snugly around the stoma, then place the flange over it for extra protection.
- Use silver nitrate sticks to cauterize open sores. It might hurt a bit initially, but it helps dry and heal weepy areas.
- If you notice persistent red, wet, itchy patches under the tape, it could be a yeast infection. Oral antifungal tablets like Canesten can help, as topical creams don't work well under the wafer.
- An ET/WOC nurse often has more practical ostomy after-care expertise than a surgeon or family doctor, so consider making an appointment with one.
2. Coping with arthritic hands during appliance changes:
- If weak grip causes you to drop supplies, set up a dedicated work surface with non-breakable containers and larger, easy-to-hold tools.
- On difficult days, ask a caregiver or home-health nurse for assistance with appliance changes.
- Keeping your hands warm, either by staying in a warmer climate or indoors, can help reduce arthritis pain while working on the pouching system.
3. Mental-health support strategies:
- Understand that depression can distort your self-talk, making you believe things that aren't true.
- Combining medication with cognitive therapy or meditation can lead to significant improvements.
- Engage in activities that require focus, like art, music, or structured hobbies, to interrupt negative thoughts and boost your mood.
- Volunteering or helping others can shift your focus away from personal problems, provide perspective, and create positive social interactions.
- Online ostomy forums are a great way to reach out, but also consider looking for local support groups or counseling services.
4. General outlook:
- Being patient doesn't mean just waiting. Actively pursue small, achievable goals in skin care, mental health, and daily routines to see better overall progress.
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