Pressure Sensation After Long-Term Ileostomy

Replies
8
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263
dianesordahl
Aug 24, 2025 4:24 pm

Hey all

I have a question. I have had an ileostomy for 45 years!
Lately, I've had pressure, it seems, coming from my butt hole, which is sewn up!

Anybody else have a problem like that?

Maried
Aug 24, 2025 5:58 pm

A sudden change like pressure or pain means there is activity of some type. I would check with your doctor.

Ben38
Aug 24, 2025 6:34 pm

I'm a newbie; I've only had my ileo for 37 years! I often get pressure that just feels uncomfortable, not painful, more so when my stoma is in a go-slow mood or I have a blockage.

It's new to you after all these years; it's best to speak to a doctor to be on the safe side.

NewlifeVictoria

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Gemini16
Aug 25, 2025 1:32 am

I agree with the two comments above. I also want to mention the pelvic floor, pelvic floor dysfunction specifically. Something to consider.

IGGIE
Aug 25, 2025 12:29 pm

Totally agree with all that has been said, make an appointment to see your doctor.

Regards, IGGIE

 

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ron in mich
Aug 25, 2025 1:17 pm

Hi all, the only time I have pressure is from lifting something that's too heavy, like 40 lb. bags of bird seed or potting soil for plants.

infinitycastle52777
Aug 28, 2025 2:00 pm

Check with your doctor, especially if it is or becomes painful.

labjano
Sep 02, 2025 4:10 pm

Hello - I have been dealing with a pudendal nerve entrapment since 2019. It's caused by many perineal abscess/fistula surgeries. All the scar tissue is compressing a nerve. I've tried everything. The only thing that decreases the pain is an ice pack between my butt cheeks. I work full time at a hospital lab, but it's really getting the best of me. Right now, I'm pretty sure I have a bladder perineal fistula brewing. Increased pain in both areas. Unfortunately, I can't get in to see my GI doctor until October. I hope you get answers and relief from the pain.

Maried
Sep 02, 2025 8:45 pm

Does heat help? Sitz bath and/or heating pad? Until you can get in to see your doctor, pain can really wear you out. Get lots of sleep when possible. Tylenol and Advil help. Also, ask the doctor for antibiotics.

My Crohn's disease started in my anus, and the pain was awful.