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Jan 20, 2018

Coping with Anxiety and Sickness - Temporary Ileostomy Journey

This topic is about a 40-year-old woman who is navigating the challenges of living with a temporary ileostomy after emergency surgery for perforated diverticulitis. She is dealing with both physical and emotional recovery and is preparing for a future reversal surgery. Here are some insights and advice that might help:

- Emotional and Coping Strategies
1. Engaging in creative activities like writing poems or rap can be a great way to distract and reduce stress.
2. Consider seeking professional counseling for PTSD or depression, as acknowledging these feelings is important.
3. Mindfulness practices, guided meditation, and deep-breathing exercises can help manage daily anxiety. Try to practice these several times a day.
4. Focus on taking recovery one day or even one hour at a time, and try to maintain a positive mindset.
5. Joining support groups can provide shared experiences and help reduce feelings of isolation.
6. It's common to feel faint or nauseous during early pouch changes, but this usually improves over time.
7. Some people find that naming their stoma helps with acceptance.

- Reversal Surgery Experiences
1. Many people have had successful and uncomplicated reversal surgeries, with easier recoveries than expected.
2. While hoping for the best, it's wise to be mentally prepared for possible issues like adhesions or hernias, which can help reduce fear.

- Peristomal Skin and Products
1. Blisters and ulcers around the stoma are not unusual, so following up with a wound-care nurse is important.
2. Trying different products is normal. Some users find Hollister wafers and flanges effective, while others prefer ConvaTec.
3. Hollister Adapt spray is popular for adhesive removal and skin preparation, but Hollister paste may irritate some skin, so trying a different brand might help.
4. Vacuum-assisted closure (VAC) has been beneficial for some with multiple abdominal surgeries.

- Output, Diet, and Odor Control
1. Carbonated drinks can increase gas, so reducing or eliminating ginger ale might help with foamy output.
2. Dairy products can loosen stools, so it's important to monitor your tolerance.
3. Foods like watermelon and high-fiber items can cause blockages if not chewed well.
4. Empty the pouch when it's one-third full to minimize pressure on the seal.
5. Thinking of the output as "processed stomach contents" instead of stool can help reduce the "ick" factor.
6. Na’scent ostomy deodorant is a popular choice for odor control, but trying different brands can help find the best match.

- General Encouragement
1. Scars and stomas do not diminish personal worth or relationships, and partners often accept them more easily than expected.
2. Anxiety spikes are common at certain times of the day, and short-acting medication, if prescribed, can be helpful while developing long-term coping skills.
3. Feeling overwhelmed after multiple abdominal surgeries is normal, so practicing self-compassion is essential.
See full discusison
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