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Jan 21, 2018

Emergency Surgery and Recovery: My Ostomy Journey

This topic is about navigating life after an emergency surgery that resulted in living with an ostomy. The story begins with a sudden health crisis on New Year’s Eve, leading to a hospital stay with pneumonia and two perforations in the large bowel. After enduring a seven-week induced coma, two weeks on life support, and multiple surgeries, the individual faced the challenge of living with an ostomy after the removal of the colon. The recovery journey included dealing with severe skin damage, frequent changes of the ostomy flange, and feelings of embarrassment and depression, especially during family gatherings. Now, two years later and at the age of 65, the person is feeling well and is learning to live confidently with an ostomy.

Here are some pieces of advice and insights for coping with an ostomy:

1. Remember that your ostomy saved your life. Try to reframe any embarrassment by focusing on the life-saving purpose of the surgery. It's possible to feel proud while living with an ostomy.

2. Many people have lived with an ostomy for decades and report having normal, fulfilling lives. With time and adaptation, you can expect the same.

3. Focus on moving forward by celebrating your survival. Set goals and engage in activities you enjoy to help counter feelings of depression.

4. Consider these diet and food tips from experienced ostomates:
- Enhance flavors with salad dressings or mild seasonings while avoiding overly spicy foods.
- Chicken, especially white meat, is generally well-tolerated, while dark meat might be harder to digest.
- Opt for small-shaped pastas like macaroni instead of wide noodles like lasagna sheets to reduce the risk of blockages.
- Grapes can be easier to digest when halved with a grape-cutter.
- If certain foods are off-limits, enjoy their aromas or the sound of others eating them to feel included.

5. Engage with supportive communities for shared experiences, troubleshooting, and emotional encouragement. These connections can be invaluable in your journey.
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