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Jun 23, 2018

Tips for Traveling Abroad with a Colostomy

This topic is about preparing for a trip after finishing FOLOX chemotherapy, specifically focusing on managing a colostomy while flying. The traveler is planning a short flight to France and is looking for practical advice to handle potential challenges, such as unpredictable pouch output, small airplane lavatories, and hot weather. Here are some helpful tips and insights:

1. Pre-flight preparation:
- Apply a new pouching system the day before or on the day of travel.
- Monitor your food intake 24 hours before flying to help keep output stable.
- Pre-cut any flanges or wafer openings and pack scissors in checked luggage to avoid security issues.
- Download and print the TSA “Hidden Disability / Medical Device” notification card for easier security screening in the U.S.
- Inform security personnel about your ostomy; they may swab your hand after you pat your pouch, but they are not allowed to touch it.

2. Packing and supplies:
- Bring at least double the usual amount of supplies, as ostomy items can be difficult to find abroad.
- Keep all essential supplies in your carry-on bags; do not check them.
- Have a small “grab kit” (pre-cut wafer, pouch, wipes, disposal bags, tape) in a purse or tote for easy access.
- Medical liquids and pastes related to ostomy care are exempt from standard airline liquid limits, so declare them if asked.
- Bring waterproof tape for emergency seal reinforcement.

3. Boarding, seating, and lavatory strategy:
- Empty your pouch just before boarding, as airplane lavatories are small.
- In economy class, use a terminal restroom as boarding begins to board last with an empty pouch. In premium cabins, board early, stow your bags, and then use the aircraft lavatory before taxiing.
- Choose an aisle seat if possible for easier bathroom access.
- Plan pouch empties around take-off and landing times, as you must remain seated during these periods. Use the in-flight map to time your emptying when descent starts.
- For short flights (around 2 hours), an empty pouch at boarding is usually sufficient to reach your destination comfortably.
- If an emergency change is needed in-flight, focus on attaching a pouch quickly; a perfect change can wait for a larger airport restroom. Long-haul aircraft often have roomier lavatories.

4. Heat and activity:
- High temperatures and sweating may reduce wear time (e.g., from four days to three), so carry extra barriers and pouches.

5. Reassurance and mindset:
- Many people have successfully flown domestically and internationally, including long trips, without major ostomy issues.
- Traveling can be an important emotional milestone after treatment, so managing stress is crucial as anxiety can increase output.
- Unexpected situations, like a pouch loosened by salt water, can be managed with spare supplies and tape. Confidence grows with experience.
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