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41,421 members
Dec 27, 2007

Ileostomy and Multiple Sclerosis - Anyone Else?

This topic is about living with both an ileostomy and Multiple Sclerosis (MS), and the search for others who might be experiencing the same combination of health challenges. It shares the story of someone who has been through a lot and is looking for connection and understanding from others in similar situations.

Here are some insights and advice shared by others:

1. Many people have experienced a similar journey with MS, starting in their teenage years and receiving a formal diagnosis around the age of 40, eventually progressing to a secondary-progressive phase.

2. One person with a stoma since 2005 shared their experience:
- They were initially misdiagnosed with Fibromyalgia or Chronic Fatigue Syndrome, but later found out they had systemic acidosis. Treating this condition significantly improved their immune function and overall health, so it might be beneficial to discuss this with your doctor.
- Having a stoma did not prevent them from experiencing major life events, such as getting married just four months after surgery.

3. Another individual with secondary-progressive MS and several autoimmune conditions, including Rheumatoid Arthritis, manages daily life with a colostomy. This shows that it is possible to live with multiple autoimmune diseases and an ostomy, and still manage daily activities.
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