This topic is about how living with an ostomy can transform one's life and bring happiness, especially after struggling with conditions like ulcerative colitis. The originator of the discussion shares their personal journey from enduring years of discomfort and social withdrawal to finding relief and joy after receiving a permanent ostomy. Here are some insights and advice shared in the discussion:
1. After the surgery, the originator found freedom from the constant search for bathrooms and the pain and urgency that came with ulcerative colitis. This allowed them to:
- Exercise daily, including activities like running, walking, spinning, weight training, and yoga.
- Relax and smile more, becoming known for their cheerful demeanor.
- Reconnect with family and friends, communicating with clarity and sincerity.
- Serve as a messenger of hope for others considering surgery, highlighting that an ostomy can be a life-changing gift for those with UC, Crohn’s, and colorectal cancer.
2. The originator raises concerns about medical practices, questioning whether doctors focus too much on short-term fixes rather than long-term quality of life. They ask:
- Do other patients feel that doctors often overlook long-term quality of life?
- Why are repeated surgeries performed when they often lead to complications and an eventual ostomy?
- Why do surgeons sometimes leave a diseased rectum in place instead of opting for a permanent ostomy?
3. Quality-of-life improvements are echoed by others with UC and Crohn’s, who say an ostomy ends bathroom urgency, eliminates accidents, and allows full participation in life. Many feel more relaxed and view the pouch as a small price for freedom.
4. Physical activity and travel are possible post-surgery, with members returning to cardio, gym workouts, and long-distance driving. One member even flew internationally just over seven weeks after surgery without issues.
5. Living with a pouch is often seen as easier than dealing with uncontrolled bowel disease. Emptying the pouch is predictable and less stressful than urgent bowel movements.
6. It's important to be your own advocate, as some physicians may push for reconnection or multiple surgeries despite diminishing returns. Dr. Vogel at the Cleveland Clinic is noted for skillful ostomy surgery.
7. For those with a colostomy that behaves like an ileostomy, managing it as an ileostomy in terms of appliance choice and nutrition can be beneficial. A British Journal of Nursing article on nutrition for colostomy and ileostomy is recommended.
8. Community support is vital. Forums and fellow ostomates offer essential emotional support, humor, and practical advice, with a shared sentiment that "Ostomates Rule!
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