Ostomy Revision Experiences and Advice

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4
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353
Bets
Aug 13, 2025 5:16 pm

Has anyone had their loop colostomy revised? I have had mine in prolapse for a year and 6 months. Originally, I thought he could reverse it, but no, so it's going in a different spot with an extra hole to vent. Has anyone else had this done, and how long was your procedure? And does anyone know how long you can keep your stoma in prolapse? Thank you.

Bets
Aug 14, 2025 2:03 pm

Marecat I have seen on this site others that had a reversal, and they too wished they could go back to a stoma. Thank you, and wishing you the best of luck.

Posted by: Audrey Warren

This site is a godsend. As a newbie (colostomy on Nov 8, '21), I look at it every day for a number of reasons. Reading what people are going through makes me grateful that my elective surgery because of a severe case of IBS-C is nothing compared to what they have been through and are still living with.

I don't have to go to the hospital for anything related to my ostomy. I feel sorry for those who do and am in awe of those who can use humor to describe their ordeal. I identify with those who express their fears. I especially identify with those who are depressed because I am clinically depressed and have general anxiety disorder. How ironic that having a colostomy eliminated some of the depression and anxiety that the IBS created. I've been widowed twice and I'm on match.com.
I immediately included my operation in my profile and am pleased to say it doesn't seem to make a difference.

And there is much humor on this site and it's one of the reasons I enjoy it so much.

I could name numerous things I've learned from reading people's comments/questions/answers.

After months following on a daily basis, my only negative comment is I don't like listing the most popular members.
It's not that I don't like these people; I do. It's that I think it elicits some "Facebook"-like banter or comments that are gratuitous.

I don't do any social media and think that its merits are overshadowed by too much negativity.

Meetanostomate is in no way negative. I just think the gallery of "popularity" detracts from what is an excellent website that deals with a serious issue that causes a myriad of emotions.

Superme
Aug 19, 2025 3:56 am

Yes, but I had a loop ileostomy. I hated it because I had gas explosions in public places, causing me much embarrassment. I had the loop ostomy (two holes in a 2” stoma) without my knowledge after a failed BCIR. I also did not like the doctor who did it. I was really mad! I tried to get a revision at the Mayo Clinic and Cleveland Clinic, and both said they wouldn't touch it. I then called the doctor who did my BCIR, and he said he could do it. Thank God he came through! I had the revision done at the Palms of Pasadena in St. Petersburg, FL, by Dr. Renke. No more gas explosions, and my stoma size is now 1-1/8”. Mike

Bertha
Aug 19, 2025 11:14 am

If you mean revised and not reversed, my colostomy was revised to an ileostomy. My colostomy began prolapsing after only a few months, less than 6 months in fact. Each time it prolapsed more and more, and it not only looked horrific, but it was also a nightmare trying to thread it through the hole of the stoma bag to attach the bag. I suffered endless leaks. My gastric surgeon didn't seem to think it was an issue and attempted to manually push it back inside, which was extremely painful. Two nights later, it totally prolapsed, and a friend drove me to the hospital with me cradling my intestines on my lap, tucked inside an adult diaper to keep it from necrotizing. Two days later, my colostomy was revised to an ileostomy. It's neater, smaller, and far easier to manage. It's been almost 4 years since it was revised, and touch wood, so far, so good. Wishing you the best of luck.

shonakipfer
Aug 19, 2025 4:38 pm

Can I ask why you wish you still had a stoma? I'm getting ready to have my loop ostomy reversed.

 

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