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Aug 13, 2025

Ostomy Revision Experiences and Advice

This topic is about dealing with a loop colostomy prolapse and the experiences and expectations surrounding surgical revision. A prolapsed stoma can be a challenging situation, and when reversal isn't an option, surgery to relocate the stoma might be necessary. Here are some shared experiences and advice from others who have been through similar situations:

1. General experience with prolapse and revision:
- Prolapse can worsen quickly. One person shared that their colostomy completely prolapsed within six months, leading to emergency surgery when the bowel couldn't be manually reduced anymore.
- Surgeons might try manual reduction first, but this is often painful and only a temporary fix.
- A full prolapse can lead to serious complications like strangulation or necrosis, so it's advised to consider urgent revision rather than living with it indefinitely.

2. Revision outcomes:
- Some have transitioned from a colostomy to an ileostomy, finding it neater, smaller, and easier to manage, with positive results lasting several years.
- Revising a loop ileostomy to a single stoma helped eliminate embarrassing gas issues in public.
- While specific operation times weren't mentioned, those who shared their stories reported uncomplicated recoveries and long-term satisfaction.

3. Access to skilled surgeons:
- Large medical centers sometimes decline revision cases, but success has been found with specialized surgeons, such as one at Palms of Pasadena Hospital in St. Petersburg, FL.

4. Reversal versus permanent stoma:
- Some regret having a reversal with a J-pouch due to issues like frequent bowel movements, pouchitis, incomplete continence, and lifestyle restrictions.
- A couple of people eventually chose to return to an ostomy, one after less than a year and another after 16-18 years.

5. Practical considerations:
- A prolapsed stoma will likely continue to stretch, so addressing it surgically sooner rather than later is recommended.
- If a vent or second opening is planned, discuss gas management with your surgeon to avoid uncontrolled releases.
- When selecting a surgeon for revision, look for someone experienced in complex ostomy work. Testimonials suggest better outcomes with specialized colorectal surgeons in dedicated ostomy centers.
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