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Aug 30, 2018

Stoma Challenges and the Need for Advocacy

Topic Explanation
The topic is about advocating for change for ostomates by writing to lobbyists and legislators. The initial post highlights the challenges faced by ostomates, the lack of understanding and support from healthcare workers, and the need to educate decision-makers to bring about change in the allocation of medical supplies.

Replies and Insights
- Healthcare workers, including those in emergency rooms, often lack the knowledge to properly treat ostomy patients.
- The lack of understanding extends to insurance companies and government offices dealing with medical supplies.
- Personal experiences of ostomates in emergency rooms reflect the lack of awareness and knowledge among healthcare professionals.
- Lobbying and targeting decision-makers for personal education is crucial to achieve change.
- Decision-makers may ignore issues that do not directly affect them, and lobbying efforts require time, effort, and resources.
- Writing letters to decision-makers, such as lobbyists and legislators, can make a difference and bring about change in the allocation of medical supplies.
- Collective action and raising awareness about the challenges faced by ostomates can have an impact on decision-makers.
- Politicians may be more empathetic if they have personal experiences or close connections with the issue, making personal stories and experiences important in advocacy efforts.
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