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Sep 05, 2018

Reversal Possibility After Colectomy and Bleeding - Need Advice

This topic is about someone who has been dealing with a complex medical journey involving colitis, an emergency colectomy, and ongoing issues with their rectal stump. They are considering their options for a possible reversal surgery and are seeking advice on how to proceed given their current health challenges.

Here are some helpful insights and advice shared by others who have faced similar situations:

1. Sometimes, decisions about surgery need to be made on the spot. Surgeons might try to create a J-pouch during the first re-attachment surgery but may have to stop if there is too much inflammation. Even if a J-pouch is created, it might only work for a few years before failing. It's important to be prepared for the possibility of needing a permanent ileostomy.

2. Living with a long-term ileostomy can still lead to a fulfilling life. One person shared that they have lived over 50 years with an ileostomy after removing their bleeding rectal stump and have never regretted it. They emphasize that many people with J-pouches eventually experience issues like leakage or failure and return to an ostomy. Life can still be full, including school, career, marriage, and children.

3. Choosing the right surgeon is crucial. Make sure you have a surgeon you trust completely and feel both physically and mentally ready before considering a reversal. Getting a second opinion can also be beneficial.

4. Even if there is no active disease, reversal surgeries can result in altered bowel function, such as fecal impaction or irregular motility. Be prepared for a long adaptation period that requires patience.

5. Trying a reversal first keeps the option open for a later permanent ileostomy. Some people find this risk acceptable, while others prefer to avoid additional surgeries and opt for a definitive stoma surgery.

6. Some have found benefits from complementary measures like probiotics, "aerobic oxygen," careful diet, and energy healing as additional support to medical care. Exploring supportive natural therapies might be worth considering.
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