Hi! I am hoping you guys can share some insights about how likely a reversal might be for me...
I was diagnosed with indeterminate colitis in 2005 at age 16. I had relatively no flares between diagnosis and 2015/2016 when I required emergency surgery for a colectomy. I have an ileostomy now (which I hate) and have been hoping to have a reversal done. I've been on Entyvio since surgery. I've been experiencing more and more frequent rectal stump bleeding and urgency the past 6 months or so.
I had a scope today, ileostomy and small bowel look good (no inflammation). However, the "sigmoid" scope was too painful to complete. The report says there was spontaneous bleeding in the anal canal and tons of inflammation. The doctor suggests I stop taking Entyvio - I assume that means I have failed this drug as well?
Has anyone experienced this before reversal? I am not sure I'm still a candidate for reversal given this bleeding. Is anal canal bleeding different than rectal bleeding (anatomy is not my strong suit)? Any advice is appreciated.
Prior to surgery, I had tried Salofalk, methotrexate, imuran, suppositories, cortifoam, prednisone, Remicade (developed severe allergy to anti-TNF), and Stelara.