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Sep 12, 2018

Welcoming New Members and Discovering Local Support Groups

This topic is all about the joy of finding a supportive community for those with an ostomy, both online and in person. It highlights the experiences of a newcomer who has recently discovered an online forum and a local support group, and it offers some helpful advice for others in similar situations.

- A newcomer is thrilled to have found an online community just three weeks ago, where they can connect with others who understand their journey.
- They also met another new member who happens to live in the same town, which is a wonderful coincidence.
- For the first time, they attended a hospital-based ostomy support group. This was recommended by their physician’s nurse after they experienced some skin irritation.
- The support group offers many benefits, including monthly meetings, social events like picnics and an upcoming Christmas party, lots of useful information, refreshments, and access to an Enterostomal Therapy (ET) nurse.
- The newcomer is so pleased with the community that they’ve shared the website address of the forum with stoma nurses and fellow support group members.

Here are some pieces of advice and insights for anyone looking to connect with others:

1. Use online forums to connect with others, ask questions, and offer help when you can. It’s a great way to find support and share experiences.
2. Local support groups can be incredibly valuable. Many of them invite manufacturer representatives who demonstrate new products and provide free samples, which can be very helpful.
3. If you don’t personally know anyone with an ostomy, online forums can be a great resource for answering questions and learning from the experiences of others.
4. Don’t hesitate to bring up even the most delicate topics. Members of these communities have often “been there” and are ready to share practical advice and support.
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