Welcoming New Members and Discovering Local Support Groups

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Little Red
Sep 12, 2018 10:52 pm

Hi everyone. As you may know, I am a new member, only being here a little over 3 weeks. Today, I see we have a new member that lives here in my town. Werfoo, welcome. I went to a support meeting for the first time Monday at my local hospital. I'm so lucky to have a wonderful support group with many new tips and people in the same boat. Lots of information and refreshments. They meet once a month, have get-togethers, picnics, and a Christmas party coming up in December. It's a wonderful group. My doctor's RN sent me there to see the ET RN when I had an irritation, and all went from there. I'm so lucky in so many ways to find this site and my new support group. I am passing on this website to my stoma nurses and support group.

Immarsh
Sep 13, 2018 1:19 am
Hi Little Red, Welcome to the site. You're lucky to have an ostomy group so close to you. This is a good site to visit, to get to know others and to reach out if you're having a problem or can help someone else. Best of luck, Marsha
Posted by: Nini4

Well,  I  hit the two year mark. I went back and read my posts from when I first found this site. I was very fortunate in that I stumbled upon it only 4 weeks post op. I have said many times that this community really saved me. The first 2 weeks after my surgery I shut down completely. It wasn't until about the 3rd week that my son came in to my room, flicked on the light and told me I was going to have to get back to living because I was scaring him. I had fallen into such a depression.  He  ticked me off,  but it also made me stop and think- what was I going to do? Feel sorry for myself and sulk, or be grateful I was alive. 

I've re-read my journals from that time and it was after my son kicked my butt, so to speak, I took an honest inventory and had to dig deeper than I've ever had to. I mean, I had survived a pretty nasty divorce, after a pretty crappy marriage and that was tough. But this was different. I felt like I was now a handicapped person who would be limited in their life and be looked at as a freak. My mental state was precarious, at best. 

But then I found this site. I just lurked a bit before posting. I read so many of the other stories and I started to see just how full my life can be, I was not handicapped,  and certainly not a freak! The stories of survival, the sense of humor, the support and compassion was inspiring.  It was then I made myself get out of the dark, and get my sh*t together.  

Not all rainbows and sunshine at first, hardly! But with grace from myself - to myself, and the kindness and willingness of the folks here to be supportive, non judgemental and openly share intimate details about their life circumstances,  l not only survived but thrived. 

I think of all the years I had suffered with such extreme pain, barely functioning,  and the many hospital stays and how that is all behind me now.  (All fingers, toes, and legs crossed that I never have to go near a hospital for myself ever again. I think I'd rather have a fork stuck in my eye. I loathe every about them.)  

So, to everyone who has been a part of this journey with me, to say thank you is not enough. I'm forever grateful to know you all.  My Angels, each one of you. 

 And as the Grateful Dead famously said,

"what a long strange trip it's been!"

Im so happy I'm tripping with you all.


Puppyluv56
Sep 14, 2018 11:51 am

Hi Little Red,

Welcome to this wonderful website! It is so valuable to hear the experiences of the people who have had an ostomy longer than us and have paved the way for us. I have learned so much and take the advice of those here. We are in it together because I don't know anyone in my life that has an ostomy. There is a support group at our hospital, but I have never been. Once I found this site, all my questions have been answered! Don't hesitate to talk about or ask advice on even the most delicate topics! We have all been there!

Puppyluv

Mrs.A
Sep 16, 2018 12:58 am

Welcome Little Red,

How wonderful you found such a great support group that you can visit once a month. I'm sure you're going to have many interesting stories to tell both them and us. I hear some groups have reps now and then, and they bring new products and even give samples.

Looking forward to getting to know you and your experiences.

Welcome to MAO!