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41,426 members
Jan 26, 2019

Just Joined and Looking to Connect with Fellow Ostomates

This topic is about the experience of connecting with other people who have ostomies, known as ostomates, in person. A new member of an online community is hoping to meet others who understand what it's like to live with an ostomy. Here are some thoughts and advice shared by the community:

- It's common for ostomates to have never met another person with an ostomy face-to-face. Online communities like MeetAnOstomate (MAO) can help bridge that gap.

- Ostomates can be hard to identify in daily life, and many people choose not to mention their ostomy to strangers.

- If you're interested in meeting other ostomates in person, consider organizing or attending meet-ups or small gatherings.

- There are local resources available:
1. Search online for groups in your community or nearby cities. Many people are surprised to find established groups with just a quick search.
2. Check with local hospitals, as they often have monthly support-group meetings run by Enterostomal Therapy (ET) or Wound, Ostomy, Continence (WOC) nurses. These meetings sometimes feature guest speakers and representatives from appliance companies.
3. Hospital-based groups may also organize social events like picnics or holiday parties, which provide a relaxed setting to meet other ostomates.

- One member mentioned that their hospital group in the Midwest meets on the second Monday of each month and is open to newcomers.

- There are many ostomates out there. For example, there are estimated to be over 180 ostomates in New Jersey alone, so there are likely many nearby even if you haven't met them yet.

- Feel free to ask any questions you have. The community is eager to share tips and personal experiences about appliances, change routines, and daily challenges.

- Remember, ostomates are just like everyone else, with a little extra equipment.
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