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Feb 06, 2019

Advice for potential colectomy complications?

This topic is about someone who is considering a colectomy after having a temporary ileostomy due to severe slow-transit constipation. They are worried about the possibility of experiencing constant diarrhea and frequent bathroom trips if they proceed with the colectomy. They are seeking advice and insights from others who have been through similar experiences.

Here are some shared experiences and advice:

1. Personal experiences with a similar situation:
- One person had a loop ileostomy followed by a full colectomy with stoma revision. They found the permanent ostomy to be less painful and easier to manage than dealing with repeated impactions and the risk of rupture.
- It's important to consider overall comfort, age, and lifestyle when deciding. For some, living with a permanent ileostomy is preferable to dealing with chronic urgency or diarrhea.

2. Re-anastomosis options versus a permanent stoma:
- A friend who had their small intestine connected directly to the rectum experienced several bouts of diarrhea daily.
- Another person with an ileo-anal pouch (J-pouch) faced persistent anal leakage and required multiple surgeries. They found life with a stoma easier than managing leakage, though it affected intimacy and overall health.

3. Typical expectations for ileostomy output:
- It is normal to empty the pouch 6-7 times a day, and the output is usually thinner than stool from a colon.

4. Managing high or unpredictable output:
- Consider colostomy or ileostomy irrigation to create a more scheduled emptying pattern, which can reduce bathroom urgency when out.
- Working with a dietitian can help make dietary adjustments to thicken output and decrease frequency.

5. Products and accessories that might help:
- Sure Seal barrier strips are mentioned as a useful product. They are thin overlays that protect wafer edges, reduce leaks, and allow users to shower or swim without the appliance lifting.
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