Talk to others with an Ostomy
AboutI had surgery in October 2012 after a 20 year battle with Crohn's disease.Prior to the surgery,I had a 30 month flare that would not go away and as a result I gave into having surgery mostly due to the painful abscesses. Now I am living with a permanent ileostomy. It has been an adjustment to say the least, but I am feeling great and continue to plow forward (done feeling sorry for myself most days). Look at the stoma as the solution and not the problem and that will be a major step for you in coping with the surgery. I have done a lot of research and this site has helped me tremendously and I have met some very helpful and nice people. I have not let the ileostomy slow me down. Since the surgery I have traveled extensively, got a hole in one (golf) and started my own sales agency.
I am currently working on a prototype stoma flow guard to reduce restriction from pants and belts and ease any seat belt discomfort. The prototype is complete and is working very well. Not sure when I will have time to bring this stoma guard to market. I wear the stoma guard every day and it does work very well, it is light weight and has no belt. I like to meet all kinds of people so send me a note. If I can help you out with anything, please let me know.
Connect with other members
Dealing with bowl cancer hoping to have my stoma revised in the ne...
Looking for Support
Urostomy with illeal conduit following radical cystectomy in 2022 d...
I'm now in my 28th Ileo year and have just got on with it, it's bee...
hi I am lloyd and lloking for some one to maybe go see a movie or ...