Ever wondered how others navigate their ostomy journey?
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Penguins7
member
About
I had surgery in October 2012 after a 20 year battle with Crohn's disease.Prior to the surgery,I had a 30 month flare that would not go away and as a result I gave into having surgery mostly due to the painful abscesses. Now I am living with a permanent ileostomy. It has been an adjustment to say the least, but I am feeling great and continue to plow forward (done feeling sorry for myself most days). Look at the stoma as the solution and not the problem and that will be a major step for you in coping with the surgery. I have done a lot of research and this site has helped me tremendously and I have met some very helpful and nice people. I have not let the ileostomy slow me down. Since the surgery I have traveled extensively, got a hole in one (golf) and started my own sales agency. I am currently working on a prototype stoma flow guard to reduce restriction from pants and belts and ease any seat belt discomfort. The prototype is complete and is working very well. Not sure when I will have time to bring this stoma guard to market. I wear the stoma guard every day and it does work very well, it is light weight and has no belt. I like to meet all kinds of people so send me a note. If I can help you out with anything, please let me know.
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