Meet & talk to fellow OstoMates 20,338 members


I had surgery in October 2012 after a 20 year battle with Crohn's disease. Prior to the surgery, I had a 30 month flare that would not go away and as a result I gave into having surgery mostly due to the painful abscesses. Now I am living with a permanent ileostomy. It has been an adjustment to say the least, but I am feeling great and continue to plow forward (done feeling sorry for myself most days). Look at the stoma as the solution and not the problem and that will be a major step for you in coping with the surgery. I have done a lot of research and this site has helped me tremendously and I have met some very helpful and nice people. I have not let the ileostomy slow me down. Since the surgery I have traveled extensively, got a hole in one (golf) and started my own sales agency.

I am currently working on a prototype stoma flow guard to reduce restriction from pants and belts and ease any seat belt discomfort. The prototype is complete and is working very well. Not sure when I will have time to bring this stoma guard to market. I wear the stoma guard every day and it does work very well, it is light weight and has no belt. I like to meet all kinds of people so send me a note. If I can help you out with anything, please let me know.
Other Members
f, 56
I have an ileostomy which rules my life. Need to communicate with people who understand.
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Hi I am now 3 months out from surgery. I am adjusting well especially since it has not be...
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f, 54
Loving caring girl with a son of 10,I have a great sense of humour and a big heart.Love t...
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I am a 49 year old female, and I love the fact that I feel 25 (in my head only lol). I hav...
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f, 61
12 year survivor of Carcinoid Syndrome which although a rarer cancer has caused extreme g...
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lovely (f)