Join the Largest Ostomy Community
AboutI have an ileostomy after a long battle with severe Crohn's disease and a botched surgery gave me a bowel perforation that almost took my life at the age of 35. LUCKILY I survived, thanks to my age and a great surgeon, because I love life and am not ready to give it up just yet.
While living with an ostomy can be a challenge at times, for me I definitely prefer dealing with the challenges a stoma presents than the effects of disease. I will take being able to eat food and have a stoma over NOT being able to eat food and not having a stoma any day! LOL. Basically I feel that pretty much everything in life is what you make of it and this is no different.
Since I don't feel my illness or my ostomy really defines me, I go on about my life and live it to the fullest my wallet allows, lol. I'm lucky to have a second chance and I don't plan on wasting it. I am a mother to three kids from teens to toddlers (YIKES!) and I work full-time at a regional hospital. When I was home from the hospital after surgery I got sick of watching TV and reading so I used the internet to teach myself how to knit and it's one of my biggest hobbies now. I even make a little money off it :-) I also love to travel - had an AMAZING vacation in New Orleans this year - and I love the outdoors, so I camp, hike, fish, and kayak often in the spring and summer. I love live music and I make a point to see shows and concerts with friends often (as long as we have dinner AFTERWARDS, lmao).
I might be a candidate for reversal at some point but I don't think much of it. After reading some of the stories I've read (of ostomates and others suffering from different debilitating diseases) I consider myself lucky that THIS is all I have to struggle with and I'm grateful for it :-)
Connect with other members
Ileostomy. Support and experience. I have had mine since September...
California, United States
Hi I have just recently had surgery and I now have a fistula and a ...
I had surgery about 2 weeks ago and in place is a colostomy, It's t...
Florida, United States
I have indeterminate colitis & am just checking things out here.
Wisconsin, United States
Texas, United States