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I had emergency surgery due to ulcerative colitis in 2013. I went in for my reversal surgery in November 2015. Unfortunately due to severe scar tissue they were unable to form a j pouch.
I now have permanent illeostomy. Went for my reversal surgery just over a year ago. I woke up to find they couldn't form a j pouch due to severe scar tissue. I really hated having a bag. After 5 years I have grown to accept it. It does get me down from time to time, but generally I don’t think about. I would love to chat and make friends with people in a similar situation to me. Share some useful ideas and experiences.
I currently don't have any friends or know anyone with an illeostomy or stoma. I feel it would helpful and nice to build a friendship with someone with similar challenges.
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