Meet & talk to fellow OstoMates Support | Friendship | Dating 20,352 members


Looking for ileostomy friends. I was diagnosed with UC in '98. No real issues until '06 when my condition deteriorated. I had emergency surgery to remove my large intestine in 2009. I don't really have a name for my stoma, but I often refer to it as the 'little pooper,' and when he's acting up, he's the 'little a $$ hole.' So, after a relatively normal physical recovery, I had some trouble adjusting emotionally. This was partly because I was very active in various sports and hobbies like biking, windsurfing, etc... My ostomy surgery was emergency so i didn't have time to think about or prepare for the changes it would bring. Having a permanent ileostomy has certainly changed my lifestyle a bit because it's difficult to do some activities. I've pushed through the transition to find happiness again. I also finally figured out how to keep the bag/appliance on through all types of activities. I haven't had an issue with leakage in years...even hiking 25 miles with a 30 pound pack/hip belt. With this increased confidence, I've managed to find new activities to help maintain physical conditioning. And the friends available on this site have been changing. They have taught me so much. After 6 or 7 years of transitioning, I'm honestly happier today than I was pre-surgery. Don't hesitate to ask questions, especially about tips to keep a bag from leaking.
Other Members
f, 51
Seperated/Single long story.... I was diognosed with diverticula in Dec 2014 and it caused...
Ohio, United States
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Hi !!!!!!!!!!!! I'm so excited I found this site. I have so many questions and anxietie...
Georgia, United States
f, 53
Hi everyone, I have had an Illeostomy for 12 years due to ulcerative colitis. I'm a happ...
f, 51
I've had a colostomy for 5 yrs. Looking to meet others like me in the area.
Texas, United States
f, 45
Unexcepted permanent ostomy on nov 2016 due to cancer. Like many fellow osto mates, try...
, United States
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