Has anyone else named their ileostomy or colostomy?

Replies
180
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3485
Queenie Bfd
Jul 28, 2025 10:51 pm

Great name - love it

Wish
Jul 29, 2025 12:14 am

I just love this approach and mindset. Awesome!

Isla is my sunshine
Aug 02, 2025 6:39 pm

Mine is Bertha. Just a name that came to mind. I hope no Berthas out there are offended!

Anyway, it just sounds better to say that Bertha needs attention than that my ileostomy needs emptying!

ron in mich

I like MAO because i learn new things from others sharing what they use.

MassMikMouse
Aug 04, 2025 11:46 pm

Mine should be named dammit!!!!

Bob’s best friend
Aug 06, 2025 1:06 am

Two hours out of surgery, an assistant asked if I had named my stoma. I replied, “He tells me his name is Bob, and he is a retired plumber from Schenectady.” Obviously, his name is Bob.

 

Avoiding Ostomy Bag Leaking | Managing Ostomy Leaks with LeeAnne Hayden

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Rocks
Oct 15, 2025 10:56 am

Gaia,

I too struggled with endometriosis. The surgeries and endo caused scarring on my large intestines, which contributed to my needing an ileostomy. Then I developed spinal problems that caused a lack of innervation to my large intestines, which pushed my need for a stoma over the edge.

I'm still battling spinal problems. I have been living with chronic pain for 39 years.

But every day is a gift, and I am truly grateful to wake up

and smile every day.

My stoma's name is Kraken, emerging from the depths…

Have a great day from

NYC,

Rocks

Queenie
Oct 15, 2025 8:23 pm

Thanks for sharing, Rocks. It always helps to get perspective through other people's experiences. My stoma is Sadie, named after a friend's pit bull, who is adorable, much like my Sadie. Have a great day.

Queenie
Oct 15, 2025 8:26 pm

I think having Sadie as a friend/companion rather than an affliction helps a lot. And I can give her all the qualities I want to. She's stroppy, lazy... a lot like me, actually!

Queenie
Oct 15, 2025 8:26 pm

Brilliant. You need to meet Marlon (Brando).

bowsprit
Oct 16, 2025 1:18 pm

Has anybody considered the name Vulcan? The god of fire? Volcanoes are named after him. Very appropriate moniker.

Rocks
Oct 17, 2025 3:29 am

How is the Hawaiian volcano goddess Pele?….  🤔  

sonnesun
Oct 17, 2025 9:37 am

Hi. I just found this place. This is my first post here.

I presently have two stomas. One is a dummy stoma attached to my defunctioned (failed) J-Pouch.

So I have appropriately named them "Bubble & Squeak."

stevefreedenburg
Oct 18, 2025 8:55 am

I didn't name my stoma, or at least I haven't yet.

It has to be an absolutely clever or utterly boring name.

I did give a new name for my bag, though, to try and add levity... it's my pee purse. Nothing clever, just silliness.

warrior
Oct 18, 2025 10:08 am

Nothing silly about this when it's true. I refer to an ileo bag as a poop purse. I get a few laughs from people I mention it to. 👍..

bowsprit
Oct 19, 2025 10:02 am

What shall I name my stoma?

Arnelle, Linda, or Stella?

But I don't feel any affection for it.

It is, after all, a bag of s-it.

Maybe it saved my life; thanks for that.

But it left me poorer in many other ways.

To set it right will take many long days.

Queenie
Oct 19, 2025 2:18 pm

I think Bella Bowsprit sounds suitably poetic and very bella! Sadie, my stoma, agrees and is miffed that I named her after a gorgeous pit bull terrier!

Rocks
Oct 19, 2025 9:50 pm

All of your names are pretty…. I named mine Kraken because it was extracted from the depths, forced to the surface like the tentacle of a ravenous creature of the deep.

stevefreedenburg
Oct 19, 2025 11:55 pm

That's a good one; it even has an origin story.

bowsprit
Oct 20, 2025 7:13 am

Ok. Bella it is. Beautiful name. Many ways to say hello and goodbye in Italian. Hopefully, I will get to say Bella addio to Bella shortly. Best wishes.

Queenie
Oct 21, 2025 10:37 am

Just to also let you know that you really lifted my spirits. I have several co-morbidities, including early dementia, and your post made me feel braver. So thank you.

Queenie
Oct 21, 2025 10:41 am

Well, she says the nicest things about you, Axl! Come on, I bet you get a secret chuckle when you fart out of your belly in public. I certainly do! People around you checking each other out and trying to work out ... was it you? No? But...?

Queenie
Oct 21, 2025 10:43 am

I can add that to my life accomplishments. I feel a little bit like I'm Bella's godmother now. ::))

Rocks
Oct 21, 2025 9:32 pm

Hi Queenie (my grandmother used to call me Queenie 😊)

I am so glad that I could lift your spirits. I am a firm believer that a healthy dose of humor is a necessary arrow to have in your quiver when facing difficulties.

I just found out yesterday that I need yet another spinal surgery. This time, to remove cysts inside my spinal cord. The removal is to prevent needing a urostomy. I told my doctor, I do not want to be a double bagger without a fight.

I also learned that this surgery is typically relatively easy peasy… but of course my case is not. I have to be prepared for a real possibility of paralysis, the range being I can still “walk” with adaptations to needing a wheelchair. It's a broad range.

While recovering from my ileostomy, I finally got to a place that I know I could find my joy even if I am wheelchair bound. I used to be a champion dancer, so the slow steady loss of mobility has been a series of small deaths… grieving the changes, accepting my new life, and working to find joy every day.

I know you have a lot on your plate that you're facing. It is overwhelming, I understand that. I hope you can find a smile every day - it helps. To ensure I have a smile at least once per day, I smile the second I open my eyes. I lay in bed managing pain, smiling, taking deep slow breaths, allowing the special smile chemicals to release in my brain and help lift me. When you feel underwater and struggling, maybe it can help you too.

We are all here to support you! We will help sharpen your sword and repair your shield to help keep you in the battle!

Queenie Bfd
Nov 05, 2025 9:59 am

Thank you for your encouraging words. I appreciate it. Sometimes one can feel so alone.

Isla is my sunshine
Nov 05, 2025 7:14 pm

I try to remember that every day is a gift, even a nightmare one!

kristin.wicking
Nov 13, 2025 6:14 am

Hadn't thought of that angle—love the “mystery” perspective… who did that?!?!? 🤣

kristin.wicking
Nov 13, 2025 6:16 am

Love your wit and creativity!

kristin.wicking
Nov 13, 2025 6:17 am

Too funny! Thanks for sharing.

Queenie
Nov 17, 2025 10:18 am

How about Robin (Hood)? There is a bow connection. Hopefully, your Robin is good at aiming and hitting targets. It could be called a hood, which seems more exotic than a bag!

Queenie
Nov 17, 2025 10:22 am

You could call it Borne, as in Borne Borg (wrong spelling, but you can do what you want) or Borne Free (ditto) or Borne with dignity and freedom. Or Bjorn as in ABBA, my Sadie certainly thinks she's an opera star on occasions!