Ostomies in TV

Replies
32
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3396
warrior
Mar 03, 2024 12:51 am

"Fetishized." Is that a word, Ms. Imperfect? ☺️

Blame BeachBoy. He opened the door. I just followed him.

Beachboy
Mar 03, 2024 1:32 am

I am the pied piper.

ericzimmer
Aug 06, 2024 11:00 am

It's not often you see an ileostomy storyline on TV, so it was cool that Chicago Med featured it. They didn't get everything right, but at least it raises some awareness.

Posted by: ejbetty

Geekyjen,

Thanks for the reply.  I will be seeing my doctor on Friday and mention Entyvio.  I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared.  The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade.  Turns out I have been diagnosed with LUPUS. It is attacking my nervous system.  I had ulcerative colitis in 1996 and they had to remove my colon.  Had a J pouch for 10 years, until it started failing.  I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently.  I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared.  I have had two hospital stays now because of the blisters and the paralyzing incident.  I will be dealing with this forever now.  I have just been working on acceptance.

I love this website because of wonderful people like you!

 

Betty