Mucocutaneous Separation After Ileostomy Revision: Seeking Advice and Experiences

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newnormal
Feb 19, 2021 2:33 am

Hello out there. So, I just had another ileostomy revision about a month ago, it seems that my body keeps trying to close the hole in my abdomen. Yikes! This time it isn't healing as well and the skin is separating from the stoma. As the stomal swelling goes down, the separation gets bigger. I am told it will heal, and I am just trying to keep it from getting infected at this point. I am going to try infrared light, and I am taking extra collagen, C, and flavonoids, as well as upping my protein intake. I use a silver gel on the wound after thoroughly cleaning it, and I am using "crusting" powder and barrier as well as using paste. I am changing my appliance every 1-2 days. So far, so good, but it is slow going. Has anyone had experience with this, and what did you do?

Lily17
Feb 19, 2021 11:04 pm

Hi, new

Wow...I can't imagine what you're going through, and I am so sorry to hear that you are. :(

A few questions, please: From what I can tell, my surgeon may have used titanium capillary clips and/or sutures to secure the abdominal wall and end of the ileum/stoma while it healed. Any idea what technique your surgeon employed to accomplish this in your latest surgery? Did the same surgeon do all of your procedures? Who informed you that "it will heal..." with time - your surgeon? WOCN?

That you're seeing healing - even if slow - is promising!

Lily17

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newnormal
Feb 19, 2021 11:54 pm

Hey Lily17,

My surgeon used sutures. She is the same surgeon who did my other revision and that one healed just fine. When I had my ileostomy created, by a different surgeon, there were more problems with healing but that was because I was severely malnourished from Crohn's and on high dose steroids at the time. This time both the surgeon and the WOCN think it will heal, but I need to keep a close eye on it. I just got back from seeing the WOCN today and she set me up with an alginate dressing with silver and Duoderm over that. I will go back to the clinic in about 10 days for a follow-up, sooner if needed. She told me that because I have Crohn's the healing will be slower, and the Crohn's meds also slow healing. I am so glad I went to the clinic before the weekend! I am praying that the wound dressing will help, and I picked up some dark chocolate, high in flavonoids, with hemp protein on the way home :-)

Lily17
Feb 20, 2021 12:24 am

Hi, New

I wish there was something I could add besides making sure your diet is as skin-friendly as possible. Have you thought about adding a nutritional supplement beverage (like Ensure) to your diet?

It sounds like you and your medical team have a bit of an uphill battle considering the part Crohn's is playing in your recovery. You, your surgeon, and WOCN have it pretty much dialed in, as far as working to get your separation healed, and I'm glad you're exploring your options to support the healing process.

If anything, that dark chocolate may lift your spirits! :)

Be well, and do your best to make it an amazing weekend!

Lily17

newnormal
Feb 20, 2021 2:11 am

Thank you Lily17! Yes, dark chocolate always cheers me up ;-)

I make nutritional supplement shakes 2-3 times a day, the concoction is tweaked depending on my current needs. Sometimes it's the only thing I can "eat", and it actually tastes good :-) I rely mostly on Metagenics if I can get it. Way back I tried Ensure but the sugar content was so high it caused other problems for me, but I know it can be good in a pinch.

I hope you have an amazing weekend too!

 
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lovely
Feb 20, 2021 5:09 am

Sorry, you are having so much trouble. I can't add anything more than what Lily17 has said. Just want you to know I am pulling for you. Please keep us informed on how you do it. It could help some others in the future. Best wishes and stay safe.

newnormal
Feb 20, 2021 5:17 pm

Thanks, lovely! I will keep y'all informed. I hope it will be helpful. I have learned a lot from reading about other people's experiences.