Hey, so back in January '21 I had an emergency ileostomy revision. They left me with a mess of a wound, cut away too much tissue. I had lots of problems with it healing, lesions that would not heal, lots of pus, infections etc. I saw a new surgeon who thought it was maybe pyoderderma gangrenosum and suggested opening it up to let the pus out. Wrong! I have seen two dermatologists who said it was classic PG and even a small biopsy would make it worse. It is caused by trauma and made worse by trauma, it's autoimmune (I have Crohn's so pretty much everything that happens is my immune system overreacting, even when I am not having a GI flare). A dermatologist gave me corticosteroid injections at the sight about a month ago and it completely healed. Yay! The lesions are opening up again so I am going back for another injection. I tried the corticosteroid ointment, interfered with adhesion, and solution, alcohol based-need I say more. One of the dermatologists that I am seeing specializes in autoimmune skin issues and said that PG is usually misdiagnosed and made much worse with improper treatment. Even the ostomy nurses didn't catch it. So just a heads up to everyone that PG is usually misdiagnosed. Not sure if this is something that I will have to deal with for a long time or not. I have to change my ostomy every other day at least and use wound dressing(Aquacell and Duoderm) when it's flaring.
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