Hey, so back in January '21, I had an emergency ileostomy revision. They left me with a mess of a wound, cut away too much tissue. I had lots of problems with it healing, lesions that would not heal, lots of pus, infections, etc. I saw a new surgeon who thought it was maybe pyoderma gangrenosum and suggested opening it up to let the pus out. Wrong! I have seen two dermatologists who said it was classic PG and even a small biopsy would make it worse. It is caused by trauma and made worse by trauma, it's autoimmune (I have Crohn's so pretty much everything that happens is my immune system overreacting, even when I am not having a GI flare). A dermatologist gave me corticosteroid injections at the site about a month ago, and it completely healed. Yay! The lesions are opening up again, so I am going back for another injection. I tried the corticosteroid ointment, interfered with adhesion, and solution, alcohol-based - need I say more. One of the dermatologists that I am seeing specializes in autoimmune skin issues and said that PG is usually misdiagnosed and made much worse with improper treatment. Even the ostomy nurses didn't catch it. So just a heads up to everyone that PG is usually misdiagnosed. Not sure if this is something that I will have to deal with for a long time or not. I have to change my ostomy every other day at least and use wound dressing (Aquacell and Duoderm) when it's flaring.

This is a remarkable community of 40,822 members.
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Eagles2023
Yeah wow, this site helped so much, I mean really who do you know with this infliction? No one, felt so alone and disgusted by myself every turn.
But it ended up being so damn strengthening, I got fucking moving, really only another choice.
That's
Honesty
Truth
I was damaged by a procedure and ended waking with this, I understand all of you.. perhaps you had to have it, I get it.. doesn't matter either way.
Just wanted to share that