Seeking Advice on Managing Stoma Issues with Weight Loss

Hi everyone,
Having really bad problems with bag leakages both day and night time.
A bit of what's been going on:
I've lost 54 lbs in weight since Christmas. Great, I hear you all say, but I'm afraid not. My stoma has sunk; when I stand or sit, you cannot see my stoma at all. I have tried at least 10 different bags and seals to no avail. The consultant has stated that he doesn't want to re-fashion my stoma due to me stating I'm wanting to lose some more weight. He says we will only be in the same position 6 months down the line! I have got urine sat in a "well" around my stoma.
I'm trying to get on with my life, but it's so hard at the minute.
Any advice on where I can go now?
Hugs,
Tine
xx

Tine, have you tried convex rings as well as convex barriers? My stoma was inverted. I have to use both to pull it out so my ileo doesn't leak.
Luck!
Eddie
🔒 Login to see image

Oh, poor you, that's horrible, but most of us have been there! I think that probably convexity is the way forward, but have you had the stoma nurses around recently? They may be able to help?

Other things like using the rings, drying with a hairdryer, getting something that helps with the stickiness like Comfeel sachets - sorry, that is all I can think of at the moment - good luck xxx

I leak a lot, but I use Hollister Med Adhesive, stock number 7730, which works well for me. You spray the glue on the wafer and wait a couple of minutes for the glue to get sticky. You can also put 2 layers on the wafer; it helps out more. I also use Hollister wax rings 7806; those are the 4" rings, and I have the 2" as well.

Hi all, thanks for the advice as I'm a "newbie." I thought it was easier if I told you what I've got:
Covatec- pouch-405448, convex skin barrier-409268
Sensura-Click pouch-11841, Sensura-Click Xpro base plate-11015
Hollister-pouch-1452, Hollister- barrier rings-79520
I just seem to be going round in circles with the stoma nurse at the minute. The above are all new that were given to me on Friday, each one has leaked
🔒 Login to see image

Hugs
Tine
xx

My Ostomy Journey: Jearlean | Hollister

I am very interested as to why you lost the weight.  Not sure what kind of ostomy you have but I have an ileostomy.  I went from 120 pounds to 91 pounds and the doctors say that I just do not absorb the food.  They tested my for cancer and everything else you could think of.   I am sorry that you are having problems with leakage.  Once in awhile I have a leakage.  I would like to know more about you and your ostomy.  Maybe I can learn something from it.  My thoughts are with you and wish you all the best.  Lisa

🔒 Login to see image

Convex for me too, and I also have a "moat" round my stoma. Lisa -hi. Good to see you. Belinda.

One thing I didn't see you mention is an ostomy belt. Convex appliances, Eakin seals, skin barriers, and a belt should work. Is this happening mostly when you sleep? If so, try to put a pillow between your legs, lay on your side, and your pouch should be free and not crushed. Just some thoughts...
Jeff

You don't say if you tried a convex wafer; my weight is at my stomach and I have a colostomy, and sometimes when I stand, my stoma is almost inverted, and I find a 2-piece convex wafer works great.
Hope this helps.

Hello Tine,
I've had my ileostomy for going on my 7th year now, I believe... My, how time has flown. I went from using 1-piece pouches to 2-piece pouches. I use ConveTec Sur Fit Stomahesive Wafers #125263, the large bags #413169, and small bags for swimming and the like #401530. I also use Stomahesive powder. I've learned that I cannot wear my jeans as tight as I like because that puts pressure on the output hole of the stoma. I still test it from time to time (really because I feel like my jeans will get looser as the day wears on... but, not).
I know that it is mind-boggling... leaks and blow-outs, I've had many of them... but, it is a lot better than poop in the britches or running to find the bathrooms.
It is good to have a place like this where we can get others' ideas.
Celeste