Nighttime leaks - Seeking advice for consistent morning leaks

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1353
douglasrbrown2
May 04, 2022 7:03 am

I am just about 4 weeks into my ileostomy from stage 3 rectal cancer. The surgery was a success and my cancer is gone. I have about 9 more weeks till reversal surgery, so I am a short timer with my ostomy (I continue to pray this is the fact). My problem is I have leaks every day for the last 2 weeks. I have posted once in the past about this and received excellent feedback.

I had 3 major blowouts this past Sunday, other than that my leaks occur at about 3:00 AM every morning. I am still working and travel the state for my job with no issues getting in and out of the car, looking at job sites, etc. I get up every couple of hours at night to empty my bag. My question is why would my leak occur about the same time every morning? I sleep on my back with very little movement. Getting very frustrated and my home nurse has not been much help.

Looking for advice.

Thank you

HenryM
May 04, 2022 8:21 am

Are you flat on your back?  I sleep on my back too, but I pack a bunch of pillows behind me so that I'm actually just reclining rather than flat on my back.  That way any discharge can flow downhill, as it were.  Even when I go to the dentist for a cleaning, I won't let them put me all the way back.  She always says, "oh, you have back problems?"  I answer, "I just need to stay somewhat upright." 

Posted by: iMacG5

About seven years ago, just about every aspect of my life was ostomy related. From the moment I was told an ostomy might be needed until some months down the road I existed as a person afflicted with a colostomy. I feared someone other than my immediate family might find out I had a bag. Ugh! What could be worse? Suppose it filled real fast when I was out with no place to hide and take care of myself. God forbid should it leak in church! Suppose I roll over on it in bed. I was a lesser creature, destined to a life of emotional anguish and physical routines different from most of the rest of the world. I felt like a freak. Then I found folks like you guys here, read your stuff, really “listened” to what you had to say and I began looking at things differently. We know perception is everything and I began to understand how good things were relative to what they could’ve been. So many folks had it so much worse than I did. That didn’t make my discomfort go away but it exposed how fortunate I was to be dealing with my stuff and not their’s. I felt a little guilt, maybe selfishness but quickly forgave myself by understanding I just wasn’t smart enough to fix my feelings. Then, I wonder what smarts have to do with feelings. My perception was warped so my perspective toward my existence was warped.
I learned over the last few years with the help of lots of folks right here at MAO that I could be better at living just by accepting some facts. It is what it is and so what? It’s not the worst thing to happen to a person.
I think everything is, in some way, related to everything else. I just put the ostomy thing in the back seat and drive forward.
Respectfully,
Mike

Past Member
May 04, 2022 10:20 am

Hi Douglas, that is strange. It is at the same time. I have no idea. I got all kinds of weird results when I googled "waking up at 3 am". LOL Just wanted to say welcome.

Cplumber
May 04, 2022 11:36 am

Henry might have something! Laying flat on your back gives the juices time to pool and cause a blowout, also wearing a belt might help.

Good luck. I will be praying for you.

ron in mich
May 04, 2022 1:05 pm

Hi Douglas, I have an ileostomy and can't sleep on my back as others said it pools around the stoma and eventually gets under. I sleep on the opposite side of my stoma with an occasional roll over to the other side for a sip of water and doze off again.

 

Avoiding Ostomy Bag Leaking | Managing Ostomy Leaks with LeeAnne Hayden

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countyclare
May 04, 2022 1:59 pm

Very helpful comments, Henry.

I have always appreciated your ability to help advise new and newer ostomates on this site.

Keep up the good work and stay well.

Mike from Cleveland, Ohio

TerryLT
May 04, 2022 7:44 pm

I also agree with Henry's advice. Letting your output pool around the stoma for very long will allow it to start seeping under the flange, particularly if it's quite watery. The fact that you have an ileo will also contribute, as opposed to a colostomy, as your output is more caustic. I hope you are able to sleep on one side or the other. That should really improve things. Good luck!

Terry

Panko
May 05, 2022 9:03 pm

Use Coloplast Brava Tape Extenders x 2. Sorbaderm Barrier Spray. Maybe a change of brand of bag? Try Dansac Easi Fold Nova 815-15 Extra Big for heavy output?

warrior
Dec 12, 2023 5:44 am

Try sleeping standing up hahaha just kidding. I feel your pain at 2:00 or 3:00 a.m. in the morning, having to empty the bag because that seems to be the time that my stoma just kicks into overdrive. But I do believe wearing a belt and, as the others have said, trying to sleep on the opposite side of your stoma would really, really improve things for you. The worst part is losing sleep and then the next day trying to do anything at all. I'm amazed that you can still go to work and continue working, but man, I'm telling you, a good night's sleep is something I wish for. Since 2016, I have not had a decent night's sleep, so I wish you well. Try what the people have mentioned above and let us know how you're making out, okay?