Hi everyone, I am new to this site. It's so nice to be with my "people!" I've had my permanent ostomy since 2015 (my decision - j-pouch failure.) I remember using certain products to build up areas of uneven skin with my temporary stoma in 2010. That loop ostomy was a bear to deal with! I've been having seepage under my ring in one particular area where there is a slight dip in my skin next to my stoma. I change my appliance every other day because of the seepage. If I eat a lot of fiber and my stoma is very active, it's a recipe for a blowout. Does anyone need to attend to dips in their skin when putting on their appliances and, if so, would you share the products that you use? I know I could get more wear out of each bag change if I could fix this issue. Thanks in advance! Lori
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About seven years ago, just about every aspect of my life was ostomy related. From the moment I was told an ostomy might be needed until some months down the road I existed as a person afflicted with a colostomy. I feared someone other than my immediate family might find out I had a bag. Ugh! What could be worse? Suppose it filled real fast when I was out with no place to hide and take care of myself. God forbid should it leak in church! Suppose I roll over on it in bed. I was a lesser creature, destined to a life of emotional anguish and physical routines different from most of the rest of the world. I felt like a freak. Then I found folks like you guys here, read your stuff, really “listened” to what you had to say and I began looking at things differently. We know perception is everything and I began to understand how good things were relative to what they could’ve been. So many folks had it so much worse than I did. That didn’t make my discomfort go away but it exposed how fortunate I was to be dealing with my stuff and not their’s. I felt a little guilt, maybe selfishness but quickly forgave myself by understanding I just wasn’t smart enough to fix my feelings. Then, I wonder what smarts have to do with feelings. My perception was warped so my perspective toward my existence was warped.
I learned over the last few years with the help of lots of folks right here at MAO that I could be better at living just by accepting some facts. It is what it is and so what? It’s not the worst thing to happen to a person.
I think everything is, in some way, related to everything else. I just put the ostomy thing in the back seat and drive forward.
Respectfully,
Mike
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