Hi folks. I've been using urostomy bags without too many complications since 2015. But these days -- with temperatures usually over 100 degrees here in the desert -- I often have to change bags every day because the seal fails. This is probably a common problem, but I've never communicated with a fellow ostomy person ever. I realize now that there is a whole world of people who share my ostomy lifestyle. So, I want to get to know the ostomy community and share stories about our unique issues.
Sirvibe
Aug 19, 2022 1:40 pm
Hairdresser
Aug 19, 2022 8:25 pm
Hi
Not that the temps here in New England usually get to 100 degrees but it got pretty close a couple of times this summer! When it does get exceptionally hot here my ileostomy equipment does need changing more often. I am not sure if it is the equipment or my paranoia!
Glad you reached out! Now I know it’s not just me!
take care 😊
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Posted by: Puppyluv56
Hi Deb,
As you can see, the outpouring of love and support from this website will help you to find the strength to lift yourself up and out of your current emotional situation. I am lucky to have my husband by my side through all of this, so I will not even pretend to know how you feel and what you're going through alone. I do know that I have great friends on this site and in my life that have been by my side, and hopefully you have many by your side as well. You do have a lot of new friends here. Please feel free to talk through anything that is on your mind. We all go through a confidence deficit when we go through an ostomy surgery. Our body has been marred and your mind feels that way sometimes too. It is tough to move on, but you will. You will be stronger once you realize that you are still the beautiful woman you were prior to your surgery. Hopefully, you can reach out to a local support group and find some additional friends in your same situation. It always helps to have a sounding board wherever you find it!
Puppyluv
James Arnold
Aug 19, 2022 11:30 pm
Hi guys I also had this problem (had being the word). I have a urostoma and for 10 years I used a Hollister two piece. Then I see them advertising a newer one. I switched to the newer one with ceramide or some such thing. The difference was night and day! The older one only failed me when I worked and sweated, especially when it was hot. I could even spend an hour in a hot tub. However I did have to change it every three days.
The good news is that the new one has never given me any kind of problem either in one year and I only change it…….once a week! Sweating doesn’t appear to cause it to come off. It is much thinner than the old one and fits like a second skin. It is more comfortable as well
jim
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Sirvibe
Aug 21, 2022 4:23 pm
Thanks for the tip. I've been using ConvaTec urostomy supplies all these years. Overall they're ok, but if I work up a sweat, the seal will probably fail. That's why I only exercise just before I change my bag and seal.
Sirvibe
Aug 21, 2022 4:27 pm
Thanks for your reply. I've never talked with another ostomy person since my cystectomy in 2015, so I appreciate the feedback.
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