I have a urostomy and it is really high up, like above the belly button. Does anyone else have it like that, and if so, how do you wear jeans? I have recently started wearing maternity pants, which come above it. But I'm small and I would rather wear regular jeans. However, they hit the lower part of the stoma bag, which makes the urine not drain well.
Mimi3
Sep 09, 2022 2:16 pm
Ben38
Sep 09, 2022 2:36 pm
I have an ileostomy; my stoma is just above my belly button too. I wear regular jeans; the end of my bag just reaches the waistband height on jeans. I just try to buy longer shirts/t-shirts so the bag can hang out under them. As I don't have a urostomy myself, I'm not sure about the size difference in bags; yours may be bigger, so it might not be possible to do the same as I do.
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty