Ballooning bags

OK, friends.... so.... we use a 2-piece colostomy pouch system with an adaptor ring (to allow me to change Ryan's ( he is about 2 1/2 years old) pouch without changing the whole wafer system each time.  The pouch has a filter to allow air to release.  Though it tends to clog with stool within a day... it releases gas enough that the pouch does not balloon heavily at night.  Trouble is... it -does- balloon a bit and tends to have a stool odor coming from the filter.  I've been thinking about going back to a non-filter bag and just releasing the gas a few more times during the day... but what do you all do at night?  I don't want to think about going to his crib and burping the pouch several times at night... but I just know it will be a balloon if I go this non-filtered pouch route.

For those who use a 1-piece... or a system without a gas-releasing filter.... how do you keep the pouch from ballooning at night and rolling onto the puffy pouch and busting it every night?

Ryan is just about 25 lbs... and the pouches state they can withstand about 40 lbs of pressure... so I can just imagine what it will be like when he is older and near that weight!!

What can you all share with me?

thanks!  -Ryan's mom

your little man is amazing to have a bag at that age how long has he had it what a trooper

for me i have a big i would have top say i made a really big body pillow that is as firm and soft as possible so i couldnt roll over it and i snug up it so i dont roll it works alot of the time but every now and then i find myself away from it plus watch how many things he eats before bed time that cause gas there are alot so see your gaseroligist they have a list of things that are really gasy vegies, fiber and stuff to look at or look it up online

Hi, do you just use one bag per 24 hours?  I know being in the UK all my appliances are free so although I only change my bag every couple of days, I don't have to worry about cost.

I have some filters that you can stick on a bag and prick holes in.  They were for my ileo last time as I was producing a lot of gas when I was on chemo then and even the double filters on a Coloplast bag weren't coping.  

Maybe you could use a filterless bag, stick on a filter for the night time - trial and error working out how many prick holes to make but it would save the odour problem during the day.  

Or you could just stick covers on the filters during the day, burp it, then take the sticky covers off at night?  Duh that's the easiest way - but my last thought!

Anything that maintains your sleep, toddlers are tiring!

When my son was a baby he had "plagiocephaly".....which means his head was sort of flat in the back.....to keep him from sleeping on the back of his head at night I had a little wedge shaped foam thing that kept him laying on his side.  With your boy being two not sure it would work as well but something similar.....like the "hug pillows" mentioned in an earlier post.  Or even the "pillow pets" that are so popular might work for a young one.  My little boy had to have one at Christmas and I think every other kid did too because they were NOT easy to find! LOL

Good luck it sounds like you have a "full plate".....Shelia

I've had lousy results from my filters.  I'm lucky to get 8 hours out of them before they clog.  I'd agree that you should try to find non-gassy foods (milk might be a big culprit).  You could also try some beano (sp) an enzyme that helps break down the gas-causing bits in food - but please check with your MD first.

I always use filter pouches even though they aren't perfect either.  One of my real ugly blowouts was on a long road trip before I started use filters.  So I switched.

Yes, the filters leak so I have Tide laundry pens everywhere to try to salvage my shirts.  And, on occassion they clog but I just change the pouch.  But the filter isn't designed to last 24 hours cause the liquid just plugs it.  Long answer to a short question.  Change the pouch more often.  I use 1-3 pouches a day, and rarely 3.

Loren

Thanks for the replies, friends.  At least I know I am doing pretty much everything I can do to keep Ryan's clothes smelling fresh (though a losing battle) and his pouch flat.

After reading through the posts about odor, I began using eucalyptus oil drops in his pouch each time I emptied his bag.  It has worked better than all the other things I have tried.  Thanks for the suggestions, fellow ostomates!!

-Ryan's mom

Hi,

The pouch filling with air, especially at night, is something I've coped with since my surgery at age 15.  It's sounds incredible, but after a few years, the tension on my skin, actually woke me up....enough to either empty the pouch, or burp out the air.  But Ryan is a bit young for that.  

But this might help.  When I was 20, I had to have lower back surgery, and was told that I'd have to sleep on my tummy.  My Husband and I figured out two different sollutions.  We found long plastic bags, and at night attached it to the spout of my pouch.  ( we used a pill bottle open at both ends, inserted it into my pouch spout, and fastened the bag and pouch  together.  This allowed all the air to escape....and I was able to sleep on my tummy for the first time in years.  But I was older, and more aware.  The other thing we did, and this might work for Ryan....  We made a small, u-shaped foam pillow....wraped it in gauze.  I place it with the closed side on my middle,  and the open side near the hip.  This allowed the pouch to hang out on the side, and I was putting the pressure on the pillow.  I just slipped in my panty to keep it in place, but you might want to attach a small elastic band on it, to keep it in place.  

As he gets older, he'll start to figure out what works for himself.  I no longer even try to sleep on my belly...and haven't since I recovered from that back surgery.  

Just keep asking questions....and trying new things.  The "pillow" might work for you and Ryan.  

Marsha