Ostomy Support Group in PA/MD - Everyone Welcome!

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pegmarston
Jul 12, 2011 1:46 pm

Hi All,

I have found that there are not many support groups in PA that meet at least once a month. I would like to start a support group and would like to know if there is anyone out there interested in joining. I want to make sure there is a need and if there would be people who would like to attend.

The meetings would be a minimum of once a month. We could have outings, fishing, shopping, etc. This would not be just a gathering once a month and then going home. We would get connected with others as well as with our families. This is not a dating service, but if you were to meet someone at the grouping, that would be great. Families would be welcome at the outings if you wish.

This would be a great way to meet others without the scary part of meeting one-on-one. If you live in area states, you would definitely be welcome to attend. It is open to anyone.

Let me know what you think!

Peg

LMS67
Jul 13, 2011 3:34 am
Peg- Count me in - I have looked around also and can't come up with anything- I have some connections at York Hospital I could see if they have anything to help you get this started and I would be very happy to help :)
Lisa
Posted by: iMacG5

Hi Crossley. Ya know, I think it’s all about feelings. I don’t mean the pain feelings which could control everything. I mean the feelings inside our heads, our hearts and even our souls. I mean the feelings of who we are now compared to who we were; how we accept our situation or maybe we don’t. My wife asked how I felt and I said, “like crap”. She asked what hurt and I answered, “Nothing hurts, well, everything hurts, I don’t know, It all sucks.” That was a long time ago. You question if your feelings are normal. How normal is it to relocate your butt hole to your belly where it’s usually in the way of your belt and, you know. But that’s where we are and for lots of us we are so much better off than we were before, physically. Emotionally, psychologically, well, that might be a different story. I believe talk therapy is wonderful if we could find a real empathic or sympathetic listener. So guess what! I found MAO and began “talking” with a keyboard with some of the wisest, kindest most sympathetic and compassionate folks on the planet. Regardless of where we’ve been, lots of folks here have been there and worse places and found their way back healthier and happier. We really do help each other.
Keep “talking”,
Mike

pegmarston
Jul 13, 2011 9:36 pm
Lm
That would be cool. Let me know when you want to meet. Have you gone on your vacation?
Blessings
Peg
LMS67
Jul 14, 2011 2:17 am

Hey Peg, I go next Wednesday and will be gone for a week. My dad is having bladder surgery on August 5th, but any other Friday I am available. Check your schedule and let me know when you are free. :) Until then, take care of yourself.
Lisa

noona
Jul 18, 2011 3:00 am
I live in Virginia, otherwise I would love to come.
 

My Ostomy Journey: Jearlean | Hollister

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Pilgrim
Jul 18, 2011 11:05 am

Peg, although it is a well-meant, seemingly no-brainer thing to do, pulling a support group together takes maximum effort. First and foremost are the geographical challenges; it would be wonderful if everyone lived close. If you're serious, give it your all and I will try to help. Otherwise, to everyone, I cannot recommend enough that you attend the UOAA National Conferences.