FEAR FOR OSTOMATES

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Bill
Sep 03, 2016 8:57 am
FEAR FOR OSTOMATES.

When once the seeds of fear are sown.
then they are fed by the unknown.
Undoubtedly our fears will grow
from out of things we do not know.

It’s likely we’ll anticipate
unpleasant outcomes as our fate.
For even when things do go right
a stoma then becomes our plight.

Us ostomates have for so long
witnessed so many things go wrong.
It’s harder to stay positive
if all around seems negative.

When the bad things we see and learn
then fan the fires of deep concern.
And medical incompetence
can not engender confidence.

Bad news is often in a hurry
to feed our fears and inner worry.
I’ve read story upon story
and they’re rarely hunky-dory.

The media is like a filter
pushing perspectives out of kilter.
We will discern all the bad news
and this in turn affects our views.

Maybe if everything goes right
there’s not the need to speak or write.
But surely we’ve the right to fear
when operations loom quite near.

Sometimes it’s best if we don’t know
so we can rest and let it go.
When our past fears are dissipated
at last we’ll feel emancipated.

B. Withers 2013

Freebyrd
Sep 06, 2016 2:46 am

I like that, Bill. Right on.

Bill
Sep 06, 2016 5:24 am
Hello Freebyrd. Thank you for your feedback. it is much appreciated.
Best wishes
Bill
Posted by: Nini4

Well,  I  hit the two year mark. I went back and read my posts from when I first found this site. I was very fortunate in that I stumbled upon it only 4 weeks post op. I have said many times that this community really saved me. The first 2 weeks after my surgery I shut down completely. It wasn't until about the 3rd week that my son came in to my room, flicked on the light and told me I was going to have to get back to living because I was scaring him. I had fallen into such a depression.  He  ticked me off,  but it also made me stop and think- what was I going to do? Feel sorry for myself and sulk, or be grateful I was alive. 

I've re-read my journals from that time and it was after my son kicked my butt, so to speak, I took an honest inventory and had to dig deeper than I've ever had to. I mean, I had survived a pretty nasty divorce, after a pretty crappy marriage and that was tough. But this was different. I felt like I was now a handicapped person who would be limited in their life and be looked at as a freak. My mental state was precarious, at best. 

But then I found this site. I just lurked a bit before posting. I read so many of the other stories and I started to see just how full my life can be, I was not handicapped,  and certainly not a freak! The stories of survival, the sense of humor, the support and compassion was inspiring.  It was then I made myself get out of the dark, and get my sh*t together.  

Not all rainbows and sunshine at first, hardly! But with grace from myself - to myself, and the kindness and willingness of the folks here to be supportive, non judgemental and openly share intimate details about their life circumstances,  l not only survived but thrived. 

I think of all the years I had suffered with such extreme pain, barely functioning,  and the many hospital stays and how that is all behind me now.  (All fingers, toes, and legs crossed that I never have to go near a hospital for myself ever again. I think I'd rather have a fork stuck in my eye. I loathe every about them.)  

So, to everyone who has been a part of this journey with me, to say thank you is not enough. I'm forever grateful to know you all.  My Angels, each one of you. 

 And as the Grateful Dead famously said,

"what a long strange trip it's been!"

Im so happy I'm tripping with you all.


eddie
Sep 06, 2016 9:14 pm

Amen

Bill
Sep 07, 2016 5:21 am
My thanks to you as well eddie - every little comment helps.
 

Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister

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Nina1234!
Sep 10, 2016 1:45 am

Beautiful poem!!!

Bill
Sep 10, 2016 7:47 am
Hello Nina. Thanks for letting me know that you appreciate the poem as it does mean a lot to me when people enjoy the things I write. I liked your photos, even the sideways ones but I was also looking for Libby as people's best friends often say more about them than their own photos. It sounds as if you are doing well in your efforts to come to terms with everything that comes your way and I have every confidence that if you like jazz and swimming, then anything is possible!
Best wishes
Bill
Nina1234!
Sep 10, 2016 10:21 pm

Hello Bill,
Yes, I enjoy your writing! You write with passion, honesty, and a nice sense of humor! I've been trying to do things I never would before when I was working. I guess that's why I've been in bed for the last 3 days??? Second chances come with new adventures and I'm attempting to do just that, adventure! Thanks for noticing the sideways pictures! Lol! A picture of Libby and myself will be coming soon. An artist that I used to work with will be drawing the two of us when she's back in the country. No swimming or jazz as of yet, but I'm planning on going to New Orleans in late October or November, God willing!!!!
Thank you,
Nina

Bill
Sep 11, 2016 8:08 am
Hello Nina. My wife and I are both jazz fans and a trip to New Orleans sounds like great fun. I am also interested in fine art so I look forward to seeing your friend's work when you post it.
Immediately post-stoma, I found that most of life was a new adventure so I'm pleased to see that you are looking for that in your life and I do hope you take things steady and enjoy your experiences.
Best wishes
Bill
cdm
Sep 23, 2016 3:45 pm

Great poem, made me cry. Everything makes me cry.

Bill
Sep 24, 2016 7:16 am
Hello cdm. Thanks for your supportive comment. I'm glad that you put the rider in that everything makes you cry, as it was not my intention to make people unhappy by writing this or any other rhyme. Although it is somewhat satisfying to think that the verses touch on people's emotions as that is surely what poetry is partly about.
Best wishes
Bill
Angelicamarie
Dec 28, 2016 8:09 pm

That's alright, my friend. Top of the day to you! As you say, best wishes, Angelica Marie.

Angelicamarie
Dec 28, 2016 8:09 pm

Top of the day to you!

Bill
Dec 29, 2016 8:23 am
And to you too Angelicamarie!